Speechless for Rett Syndrome

Organised by Reverse Rett

The Speechless for Rett campaign aims to raise critical funds as well as understanding of how it might feel to be without a voice. Your support will help move us closer to treatments and help make sure that people with Rett Syndrome are heard.

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Reverse Rett is a patient advocacy and research organisation focused on delivering treatment for Rett Syndrome to all affected. Read more here: reverserett.org.uk For Rett Registry UK: https://www.rettregistry.uk/

Story

Thank you for visiting our Reverse Rett Speechless for Rett campaign page!

One of the many devastating symptoms of Rett Syndrome is the loss of speech.

Imagine being unable to speak to those around you, to voice your opinion, to let others know what you feel, to have a say in your world.

This June, we're going 'speechless' for just a few hours to get a glimpse into what it might be like not to have a voice.

Like many children/adults with Rett Syndrome, we'll be using our eyes and simple communication grids to make our feelings/needs/opinions known.

We hope to raise awareness and empathy as well as critical funding to drive forward clinical trials and treatments for everyone affected by Rett Syndrome.

Thank you so much for your support!

If you would like to take part in the Speechless challenge as well, please click here to register.

To find out more about Rett Syndrome and the work of Reverse Rett, please click here.

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Donation summary

Total
£1,841.00
+ £89.25 Gift Aid
Online
£1,062.00
Offline
£779.00
Direct
£2.00
Fundraisers
£1,060.00

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