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Our campaign is now complete. 5 supporters helped us raise £660.00

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Closed 07/01/2024
DCAction

Super Rare 2023 for DCAction

Super Rare is fundraising to help people affected by rare bone marrow conditions. The theme for 2023 is 'Stronger Together' because seven small charities are coming together to join the campaign.
£660
raised
by 33 supporters
Donations cannot currently be made to this page
Closed on 07/01/2024
RCN 1167150

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Story

The Super Rare 2023 Campaign is fundraising throughout February and March to help people affected by rare bone marrow conditions.

The theme for Super Rare 2023 is 'Stronger Together' because for the first time, seven small charities are joining forces to support people diagnosed with rare bone marrow conditions.

The seven small but mighty organisations in this partnership are:

The Aplastic Anaemia Trust

CAN (Congenital Anaemia Network)

DBA UK (Diamond Blackfan Anaemia)

DCAction (Dyskeratosis congenita and Telomere Biology Disorders)

Fanconi Hope (Fanconi Anaemia)

PNH Support (Paroxysmal Nocturnal Haemoglobinuria)

SDS UK (Shwachman-Diamond Syndrome)

We challenge you to be creative, silly or daring with your fundraising. Set a challenge to complete in February and March 2023 to raise money and awareness for your chosen charity.

Raise £200 before the end of March 2023 and receive a Super Rare T-shirt.

About the charity

DCAction

Verified by JustGiving

RCN 1167150
DCAction supports people living with Telomere Biology Disorders across three main areas: Advocacy - a focus on research and improved access to expert care and treatments Education - to raise awareness of Telomere Biology Disorders amongst medical professionals, patients and the public Support - to provide support and advice for people and families living with Telomere Biology Disorders

Donation summary

Total raised
£660.00
Online donations
£660.00
Offline donations
£0.00
Direct donations
£90.00
Donations via fundraisers
£570.00

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