Our recent report into the experiences and needs of people affected by aplastic anaemia or a similar or related rare condition found that;

53% of respondents reported always or often feeling anxious

64% reported some degree of loneliness

More than a fifth do not feel confident navigating the healthcare system

65% would like information how to get insurance cover

18% were unable to access the benefit system despite wanting to

By fundraising in February and March as part of SUPER RARE 2024 you are showing people affected by bone marrow conditions that they may be SUPER RARE but they are not alone.

In this video Lauren talks about the challenges of learning how to care for her son after his bone marrow transplant and how The Aplastic Anaemia Trust helped supports her family.

How we are planning to help people affected by aplastic anaemia this year;

Provide expert emotional well-being support, designed and delivered by qualified psychologists

Help members of our community to access benefits and insurance

Publish new up-to-date information resources to help people understand the condition, current research and treatment

Facilitate improved opportunities for peer-to-peer support

Raise awareness and help you to explain the condition to clinicians, teachers, employers, and the public.

Fundraise over £200 and we’ll send you a t-shirt.

Visit Super-rare.org to request a fundraising pack and learn more.