Welcome to our support page for our gorgeous Selah Grace.

Selah is aged 5 from Liverpool. She was born with a very rare genetic condition called Tessadori Bicknell Van Haaften Syndrome which causes severe global developmental delays amongst a host of other things. For Selah, her biggest struggles have been challenges with sensory processing, speech (she is non verbal) and her gross motor skills. She is still working towards walking independently!

Selah first started missing milestones from approx 6 months and by 12 months she was severely delayed. This is where our journey with Selah began and we delved into the world of therapy! Selah has greatly benefitted from a wide range of therapies over the years which have hugely contributed to her development so far.

In particular, we know that intensive therapies have been very fruitful and effective for Selah and she has been through a number of OT and PT intensives and we are always blown away by her progress.

This fundraising page is to help Just4Children support Selah in her development through physical therapy, occupational therapy and speech therapy intensives.

Her next intensive is with Therapy Stars in the October half term.

We are also planning to book her into a NAPA intensive in 2026 – a huge dream of ours that we’re excited to try and make a reality!

Thank for all your continued support for Selah and our family.

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