Our goal is to empower the families and stress the importance of their involvement in driving research. The aim is to provide support, education, and resources. Families will take away valuable knowledge intended to reach treating clinicians of SYNGAP1 patients and give families and caregivers a sound knowledge base of the disease and how to best approach available treatments.
We want to thank everyone who has contributed to the Family Meetup Program. The value that this program brings will not only help families of loved ones with SYNGAP1, but will help open doors to possible treatments for overlapping disorders linked to SYNGAP1. We thank you for you continued support.
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