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Team Isaac Forever

Team Isaac Forever, in memory of Isaac, who lost his life to a glioblastoma at just 22 years old. Through fundraising for Brain Tumour Research, we are proud to honour Isaac's legacy and help bring hope to families facing this devastating disease.

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Brain Tumour Research is the leading voice of the brain tumour community and focused on finding a cure for all types of brain tumours. We are campaigning to increase the national investment in research to at least £45 million a year and funding sustainable Centres of Excellence across the UK.

Story

Isaac was 19 when he began a degree apprenticeship in electrical engineering with the National Grid. Among his dreams for the future were getting married to his childhood sweetheart Caitlin and having children.

But Isaac was diagnosed, aged 20, with a glioblastoma, the most aggressive type of adult primary brain tumour, after suffering a seizure during a gym session in April 2024. This grade 4 tumour typically carries a survival prognosis of just 12 to 18 months.

Following his diagnosis, Isaac underwent standard treatment, including surgery to debulk the tumour, followed by radiotherapy and chemotherapy, knowing that the cancer was more than likely to return.

We were desperate to find anything that might give Isaac hope of extending his life, so we began researching alternative treatments. We discovered an experimental immunotherapy in Germany that we wanted to try, but it was hugely expensive. Thanks to the extraordinary generosity of friends, family and the wider community, we raised funds to help Isaac explore private treatment options.

He was then offered an NHS clinical trial at the Royal Marsden in Sutton, tailored to the results of his genome sequencing. For a few months, it appeared to be working, with Isaac's tumour shrinking by 40%.

Sadly, a few months into the trial, Isaac became unwell and deteriorated very quickly. The tumour had spread to his spine, and he was no longer able to travel to Germany for immunotherapy.

After exhausting all treatment options available here in the UK, it was heart breaking to be told that nothing more could be done for him.

Watching Isaac’s hopes and dreams slip away was devastating – he and Caitlin were made for each other and would have gone on to have the most amazing life together. Isaac was a family man and would have been the most perfect father.

Throughout his illness, Isaac passionately supported Brain Tumour Research.

Isaac said before his death: “The best way to improve outcomes for brain tumour patients, especially those with glioblastoma, is through research. We need better diagnostics and more effective treatment options so that one day we can feel genuine hope of a future.”

We are incredibly proud to be able to continue Isaac’s legacy by establishing a Fundraising Group, Team Isaac Forever, to support the vital work of Brain Tumour Research. We know how proud he would be looking down on us and seeing that we are continuing his mission.

- Isaac's Family & Friends

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