Our son Jude was born in 2017 with early-onset mitochondrial disease — a rare and devastating condition that affects every part of his body. It means his cells can’t make the energy they need to function. Because of this, Jude cannot move, walk, or talk, and he relies completely on us for all his care.

Yet even without words or movement, Jude speaks to us in his own remarkable ways. His eyes light up a room, his smiles melt hearts, and his quiet presence brings calm and love wherever he is. He teaches us every single day what courage, strength, and unconditional love truly mean.

Life with mito is incredibly hard at times — hospital stays, sleepless nights, and constant uncertainty. But it is also filled with love, laughter, and moments of pure joy. Jude’s twin brothers, Rocco and Ryleigh (aged 10), and his big sister, Correy Ellen (aged 12), adore him. They sing to him, make him laugh, and bring sunshine into even the toughest days. Watching the bond between them is something we’ll cherish forever.

The Lily Foundation has been a lifeline — helping us understand Jude’s condition, connecting us with other families, and giving us hope that one day, there will be answers.

Jude’s life has changed ours forever. He has shown us what truly matters — love, resilience, and the strength of family.