Our son Kieran is a bright, curious, and incredibly resilient 15-year-old. He is deeply passionate about history, engineering, and cooking, and he loves bringing his ideas to life using 3D printing. Kieran lives with Cerebral Palsy and Mitochondrial Disease (Complex I Deficiency), a progressive, life-limiting condition.

For Kieran, "mito" means facing severe chronic pain, profound fatigue, and mobility challenges that require him to use a wheelchair every single day. Yet, his illness does not define him. For several years, our focus as a family was on making memories and ticking off an ambitious travel "bucket list" for Kieran. Now that his bucket list is almost complete, we are dedicating our time and energy to fundraising for The Lily Foundation.

We are incredibly proud to represent Weston-Super-Mare and the West Country as a Lily Foundation fundraising team. Living in our corner of Somerset, we don't often see local teams or events, and we want to change that. Having experienced the devastating impact of this diagnosis firsthand, we know how isolating it can feel. The Lily Foundation has been a vital beacon of hope for us, driving medical research and supporting families navigating this unpredictable journey.

We are fundraising to help find a cure and to ensure other families—especially those in our local South West community—never have to walk this path alone. Every donation brings us closer to a brighter future for kids like Kieran. Thank you for standing with us.