When Olive was born she completed our family joining her big sister Ivy-rose.

Olive was a very unsettled baby then at 12 weeks old she had bronchiolitis from then on she had a chest infection every two weeks.

Olive never hit a milestone at the average age when she was around 13 months old she regressed and couldn't sit with no support.

From then on Olive declined health wise which resulted being admitted in to hospital for a long period of time. While there Olive had endless tests and procedures to try and find a diagnosis. While having this done olive had a central line placed so she could have TPN to try and build her up, Olive also had a Ng tube placed. After serval tests we did get told that they thought it was Mitochondrial disease but we would have to wait for the genetic testing results.

6 months later it was confirmed that Olive had Mitochondrial disease and a partial chromosome deletion this was a huge shock to us as a family.

It hurts us deeply to think what the future will hold for Olive.

It's been a hard 3 years since Olives diagnosis, with lots of hospital stays and continued new diagnosis.

Olive has a unsafe swallow so she is completely peg fed.

Her mobility has declined over the last 3 years she depends on her supportive pushchair as she can only walk a few minutes without becoming tired.

Olive has hyper mobility, hypotonia, no core strength and low muscle tone.

In 2024 we went to our first Lily weekend and was blown away by the support and the amazing opportunities that the Lilly foundation give to people with this awful disease they also support parents and siblings. This is why we would love to fundraise as much as we can to put in to research to continue to help everyone who is suffering with Mitochondrial disease. Even with what Olive goes through daily she has a beautiful smile and is always making us laugh.

Thank you for taking your time reading Olive's story and please if you can donate tor even set up your own fundraising page to help The Lily Foundation.

Love from

Chris, Hayley, Ivy-rose and Olive-grace