Ruby Wren Marshall was born perfectly healthy on 24/02/21 and remained so until she was around 6 months old when she was found to be severely anaemic. Her bone marrow wasnt working well. It would be a further 5 months until she was diagnosed with Pearsons Syndrome; a mass deletion of her mtDNA. Most of her mitochondria is smaller than it should be and so doesnt power her organs to work properly. Were so lucky as Ruby is mostly thriving right now which enables us to have hope and give her a normal life. But as she grows the faulty mtDNA will start overpowering the healthy ones even more. Her pancreas is most likely next followed by liver, kidneys, eyes, ears, heart, muscles and her brain.

Science can and will beat this, but it needs to be sooner and not later for Ruby, it feels like shes just to perfect to be lost. She just needs better batteries. So putting terrified hearts in boxes were determined to give her a wonderful loving life whilst we can. We will do anything we can to fight this and raise awareness for Ruby and her mito family. As there cant be many crueler conditions.

Please help Team Ruby in any way you can to raise money and help us save her life.