Our mission is to provide support and information to all those who are affected by Patau’s syndrome (Trisomy 13) or Edwards’ syndrome (Trisomy 18) and their related disorders. To support families, healthcare professionals and carers

Trisomy Awareness Month aims to raise awareness of these rare conditions, helping to spread knowledge and lived experiences across different media and channels.

This year, SOFT UK has already hosted our first face to face day in Northern Ireland, and we will be opening our doors to families in Leeds for the first time in May. We are aiming to host more face to face events in 2024 than ever before, supporting more families in their local areas.

We are working on a webinar series to help raise awareness of Trisomy 13 and Trisomy 18, which will be shared with health care professionals across the UK. We have created our first webinar for BMUS in January, and the next one will be coming in April.

Your fundraising and donations support our efforts in building more material like our webinars which can then be shared with professionals across the UK, helping to raise awareness of Trisomy 13 and Trisomy 18. It also helps us to host more face to face events, enabling us to reach more families in more areas across the UK.

We appreciate each and every one of you, and couldn't do what we do without you.