We are proud to announce we have nominated SUDEP Action as our Charity of Year 2020.

Tragically 21 people with epilepsy die each week in the UK and roughly 600 people with epilepsy will die suddenly with no obvious cause. This is called Sudden Unexpected Death in Epilepsy (SUDEP).

SUDEP Action is dedicated to raising awareness of epilepsy risks and tackling epilepsy deaths including SUDEP. They are the only UK charity specialised in supporting and involving people bereaved by epilepsy.

SUDEP Action provides families with crucial services including bereavement support, counselling and help with understanding the inquest process. In collaboration with UK research teams, this contact with the families also enables SUDEP Action to update the Epilepsy Deaths Register and support professionals in furthering their research into the condition.

Over the course of the next 12 months we will be taking up challenges and holding events to help raise money for SUDEP Action.