One of the common causes of sudden cardiac death in young people is Long QT syndrome. Research is ongoing to identify what medicines might be the safest for those who have Long QT Syndrome and also to develop a cure for Long QT syndrome by correcting the spelling mistake in DNA that causes the disease. This gene editing is cutting edge medical therapy; it potentially offers a chance of cure to a severely affected young person by re-writing their genetic code.

Will you support our Frontline Team?

Dr. Terence Prendiville, Paediatric Consultant at CHI Crumlin

Dr. Joe Galvin, Consultant Cardiologist, Dr. Catherine McGorrian, Consultant Cardiologist and Clinical Nurse Specialist Mags Gallagher who run the ICC screening service at Heart House, Family Heart Screening Clinic, Mater Misericordiae University Hospital.

Dr. Deirdre Ward, Consultant Cardiologist and Dr. Derek Crinion, who run the ICC screening service at CRY, Tallaght University Hospital.

Dr. Brian Blake, a GP who cares for families who have suffered a SADS death.

Dr. Mark Walsh, consultant cardiologist in CHI Crumlin

Dr. Aedin Ryan, consultant paediatrician in NUIG, Galway.

Dr. Alessandra Oggianu and Dr. Dawn Deacy, paediatric cardiothoracic surgery doctors at CHI Crumlin.

Dr John Keaney, consultant cardiologist at Mater Hospital.

Dr. Sophie Duignan, paediatric cardiology doctor at CHI Crumlin.

Paediatric cardiac physiologists at CHI Crumlin Aoife Deery, Daryl McDonald & Aoife McCaffrey.

Cardiac advanced nurse practitioner at CHI Crumlin, Fionnuala Gardiner.

Prof. Sanbing Shen, and Dr. Stephen O'Brien

Whom are all part of a wide network and the team who care for the patients associated with the Irish Inherited Cardiac Conditions Network - Cardiologists, Scientists, GP's & Nurses who are coming together to fund-raise for this vital research which will run out by September unless 30,000 is raised.

Any support that you can give will be greatly appreciated.