Scottish Huntington's Association

Women of Scotland Lunch 2025

Huntington’s disease, a genetic condition caused by an inherited faulty gene, that damages the brain over time. There is, at present, no way to slow or stop the progression of Huntington’s disease.
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Scottish Huntington’s Association is the only charity in the country exclusively dedicated to providing the expert and personalised support needed by people with Huntington’s disease, a genetic condition caused by an inherited faulty gene that damages the brain over time.

People with Huntington’s can lose the ability to walk, talk, eat, drink and care for themselves.

The dreadful toll on families is compounded further still because the disease is passed down from one generation to the next – anyone with a parent who has Huntington’s has a 50% risk of inheriting it too.

Funds raised for Scottish Huntington’s Association will help to make sure that families in your communities are supported by the specialist services they need. Scottish Huntington’s Association is here for people with the disease, their loved ones and carers, and children and young people, including young carers, and those at risk of developing Huntington’s.

Your support will help to reduce unnecessary hospital admissions, support carers and other loved ones, and alleviate wellbeing risks to children and young people through the charity’s nationwide network of HD Specialists and Specialist Youth Advisors. Donations will also help to lower household poverty through the work of its Financial Wellbeing Service.

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About the charity

Scottish Huntington's Association

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RCN SC010985
Scottish Huntington's Association supports families impacted by Huntington’s disease (HD). 800 people in Scotland have HD with a further 3200 at risk of developing it in the future. HD impacts the ability to walk, talk and swallow, can cause mental illness and affects mood, memory and mobility.

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