100% of the donations will go towards those suffering with  Adrenoleukodystrophy (ALD) and adrenomyeloneuropathy (AMN). Please visit our website for more information: www.aldlife.org  

Simply paint the colours of the Rare Disease Day logo (blue, green and pink) on your face using paint, make-up or anything handy, take a photo and post on social media with the hashtags #ALDLife #RareDiseaseDay #ShowYourRare #MyRare and tag 3 or more friends to nominate them to take part and to donate using our JustTextGiving code: 

This year's theme for Rare Disease Day is 'research', something that is crucial to help support ALD and AMN patients and their families, aiding with the development of diagnostic tools, treatments, cures and improving social care. 

• £10 funds distribution of vital information to one new diagnosis
• £25 funds two hours of telephone support
• £100 funds a support session at home
• £300 funds a grant to a family or individual in need
• £500 funds one place at the ALD Life Community Weekend