The AKU Society is dedicated to transforming the lives of all those affected by the rare, disabling disease, Alkaptonuria (AKU), which causes severe early-onset osteoarthritis. We provide specialist information, support and community to AKU patients and their families. 

Parents of children with AKU need specific support, to make sense of the diagnosis, plan for the future and connect with others going through the same experiences. We are raising money to host our first ever children's workshop at London Zoo. This will be a unique opportunity for parents to learn from specialists, for children to explore the Zoo and make friends, and for us to launch our new 'peer mentoring scheme'.  

Parent Jess expresses what this day would mean to her: 'a workshop designed for children would be hugely beneficial, as it would give both parents and children the opportunity to meet up, share AKU experiences and create lasting friendships'. 

We need your help to make this happen, thank you!