Your friends are fundraising. Don't miss out, opt in.

Team Ray are supporting The Lily Foundation to beat mitochondrial disease in her beautiful memory

Team Ray know that together we are stronger. So they are doing all they can to support families effected by mitochondrial disease and fund vital research to find better treatments and a cure.

Be a fundraiser

Create your own fundraising page and help support this cause.

Start fundraising
Our vision is for a world in which every mitochondrial disease patient has a voice and access to treatment, support to improve their life and, ultimately, a cure.

Story

Born on 24 May 1995, our daughter Tirion was full of life, personality and a spark that was impossible to ignore. She had a wonderfully sassy sense of humour and a quick wit that kept everyone around her on their toes. She never hesitated to say exactly what she thought, often with a perfectly timed sarcastic remark or mischievous grin. Yet somehow, despite that sassiness, everyone who met her warmed to her almost instantly. There was something about her energy, honesty and humour that drew people in.

In 2013 she was diagnosed with mitochondrial disease, something that changed the course of her life and brought many challenges. But even through the hardest moments, she never lost the humour and spirit that made her who she was. In fact, during the darkest days it was often her jokes and cheeky comments that lifted the people around her. When things felt heavy or frightening, she would find a way to make someone laugh.

Her sass wasn’t just part of her personality — it was part of her strength. She refused to let illness define her or take away the vibrant, funny person she had always been. Doctors, nurses, friends and family all remember her humour and the way she could brighten even the toughest moments.

She passed away in April 2018, but the impact of who she was has never faded. Her courage, humour and bold spirit remain part of the memories she left with everyone who knew her.

Donation summary

Total
£14,895.95
+ £2,353.56 Gift Aid
Online
£13,644.70
Offline
£0.00
Direct
£0.00
Fundraisers
£14,895.95

Charities pay a small fee for our service. Learn more about fees