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Closed 22/10/2018
Pachyonychia Congenita Project Europe (PC Project Europe)

London England Patient Support Meeting

PSM Fee Before September 1, 2018: £70 per person 15 years or over; £30 per child ages 2-15. After September 1, 2018, the fee increases to £90 per person 15 years or over, £45 per child ages 2-15.
£5,637
raised
by 32 supporters
Donations cannot currently be made to this page
Closed on 22/10/2018
RCN SC046480

Story

 2018 London England—PC Patient Support Meeting 

October 19-21, 2018 

Park Inn by Radisson London Heathrow   

1. REGISTER FOR MEETING at  https://www.surveymonkey.com/r/2018PSM 2. MEETING FEES  Paid before September 1, 2018: £70 per person 15 years or over; £30 per child ages 2-15. Paid after September 1, 2018, the fee increases to £90 per person 15 years or over, £45 per child ages 2-15. 

Meeting fees are waived for a PC patient and one family member attending the PC Patient Support Meeting for the first time. PC Project pays 70% of the meeting costs which include the meeting room, equipment rental fees and food including Friday dinner, Saturday lunch and dinner, and Sunday lunch as well as break food. Breakfast is included with hotel room reservations.     

3. REGISTER FOR HOTEL by phone 0208 7596 611—Be sure to mention the meeting code 1910PCCH  £79 single/ £89 double/ £109 family up to 4   

 

OPTIONAL APPLY FOR SCHOLARSHIP FUNDING at http://www.pachyonychia.org/news_events.php  Scholarship Application Deadline is July 1, 2018, and awards will be announced August 1, 2018.    Scholarship funds are based on donations and the number of scholarships will depend on funds received.  If you would like to sponsor a PCer to attend the PSM, donate here and please contact PC Project at info@pachyonychia.org

About the charity

Pachyonychia Congenita (PC) is a ultra rare skin disorder characterized by painful calluses and blisters on the soles of the feet, thickened nails and cysts. PC Project Europe is a SCIO SC046480 that works with PC Project a 501(c)3 US public charity to better serve patients internationally.

Donation summary

Total raised
£5,636.56
+ £582.50 Gift Aid
Online donations
£5,636.56
Offline donations
£0.00
Direct donations
£5,636.56
Donations via fundraisers
£0.00

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