Why this is important

Sarcoidosis is an under-researched disease with no cure. Patients have their symptoms treated with the hope that the disease goes into remission; however, in 20-30% of cases it becomes chronic and in 5% cases it is terminal. 1 in 10,000 can be expected to get Sarcoidosis. That means around a million people are suffering from a disease with no known cure.

We’ve become one of the top Sarcoidosis research funders in the world. In the last three years we’ve funded, and negotiated partnerships to increase our research spend, over £360,000 of research. Each piece of research is a building block towards a cure and reducing deaths. Our aim is to fund at least one significant piece of research every year – and to continue every year until Sarcoidosis is no more.

1 in 6 of all donations to SarcoidosisUK are from funeral plates or in memoriam donations.

James Milbourne, just 29, died of undiagnosed Cardiac Sarcoidosis.

Kevin Ross, 39 and a father of three young children, died of Sarcoidosis.

Our research aims to stop Sarcoidosis in its tracks.

Our ground-breaking new study: mTOR

Nature Immunology journal published a significant piece of research from the University of Vienna. They showed that “switching on” mTOR, a naturally occurring protein, in a mouse gives that mouse Sarcoidosis. Excitingly there are already approved human mTOR blockers. We therefore want to fund research to see if switching off mTOR in humans in turn switches off Sarcoidosis. If successful, this would provide the world’s first ever treatment for Sarcoidosis. 

We need your help

We’ve already arranged to have all donations doubled. We need to raise £60,000 of the £120,000 total needed to fund this potentially lifesaving mTOR research. 

Please consider donating to our 20th anniversary campaign. Together, we will defeat Sarcoidosis.