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CDKL5 is a rare genetic condition that mainly affects females, and was only recognised as a distinct entity in 2012. There are thought to be about 50 children and adults with a diagnosis of CDKL5 in the UK. We are a UK charity aiming to support affected families and to raise funds for research
www.curecdkl5.org
info@cdkl5uk.org
CDKL5 UK Registered charity number 1149099
"For our little Soldier and CDKL5 Champion"
Heike Knip donated
£10.00 + £0.00 Gift Aid
"Amazing Charity close to our hearts."
Rebecca Quayle donated
£250.00 + £0.00 Gift Aid
"Money raised from the Embrace the Legends Charity Football Match and event. As per email to Carol. Love from Berragan, Finley, Grove & McKews Family. 💙❤️"
Andrew Berragan donated
£3,066.50 + £0.00 Gift Aid
"With love."
Nell donated
"Money raised by the team at Krones UK "
Krones UK donated
£220.00 + £0.00 Gift Aid
"In memory of Gweneth Probert, Great Nan of Dafydd Thatcher who suffers with this rare disease."
Daphne Thatcher donated
£250.00 + £62.50 Gift Aid
Lindsey Smith has raised $14,430.59 so far
I'm Multiple events for Lindsey Smith because we want to find a cure of CDKL5 Disorder
Benoit Grand has raised $4,226.68 so far
I'm Losing 20kg (3.15 stones) in 3 months for Benoit Grand because I shall honour Louise's memory
jovielaine Guinto has raised $189.52 so far
I'm BeGung Ho 5K - Fundraising for jovielaine Guinto because it is such a great cause.
