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CDKL5 is a rare genetic condition that mainly affects females, and was only recognised as a distinct entity in 2012. There are thought to be about 50 children and adults with a diagnosis of CDKL5 in the UK. We are a UK charity aiming to support affected families and to raise funds for research
www.curecdkl5.org
info@cdkl5uk.org
CDKL5 UK Registered charity number 1149099
"For our little Soldier and CDKL5 Champion"
Heike Knip donated
£10.00 + £0.00 Gift Aid
"In memory of Erin Gibbs"
Anonymous donated
"In loving memory of Erin Gibbs, taken too soon"
Kelly Payne donated
£20.00 + £5.00 Gift Aid
"FOR OLIVIA BLACK "
£50.00 + £0.00 Gift Aid
"I am making this donation on behalf of Edrington-Beam Suntory UK. Many thanks Nicola"
Edrington-Beam Suntory UK donated
£100.00 + £25.00 Gift Aid
"Thanks for the face masks."
Colin donated
£20.00 + £0.00 Gift Aid
LINDSEY SMITH has raised $13,864.41 so far
I'm Multiple events for LINDSEY SMITH because we want to find a cure of CDKL5 Disorder
Benoit Grand has raised $4,129.55 so far
I'm Losing 20kg (3.15 stones) in 3 months for Benoit Grand because I shall honour Louise's memory
Nick Smith has raised $3,057.70 so far
I'm Everything we can to raise money for CDKL5 UK 🇬🇧 for Nick Smith because My son was diagnosed on 24th Aug 2017 with CDKL5
Nikki Maguire has raised $2,875.01 so far
I'm Nikki for Nikki Maguire because I want to help fund and raise more awareness.
Kay Pullen has raised $575.25 so far
I'm We are going to Run, cycle or do something for Kay Pullen because CDKL5 UK supports llittle Amber be great
Jill Hoather has raised $413.54 so far
Jill's TEN WALKS WITHIN A JOGGLE
