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CDKL5 is a rare genetic condition that mainly affects females, and was only recognised as a distinct entity in 2012. There are thought to be about 50 children and adults with a diagnosis of CDKL5 in the UK. We are a UK charity aiming to support affected families and to raise funds for research
www.curecdkl5.org
info@cdkl5uk.org
CDKL5 UK Registered charity number 1149099
"For our little Soldier and CDKL5 Champion"
Heike Knip donated
£10.00 + £0.00 Gift Aid
"for Louise & her parents Moyka & Ben xx"
Tracie C donated
£100.00 + £0.00 Gift Aid
"Love to 7 year old Jade Oliver from Uncle John & Auntie Trishi xxxxx"
Janek Popiołek donated
£40.00 + £10.00 Gift Aid
"In loving memory of Louise Uckiah Grand. Sending lots of love to all the family xxx"
Stefanie Francois donated
£50.00 + £12.50 Gift Aid
"Sleep tight beautiful girl xxx"
Jacqueline Thaw donated
"In loving memory for beautiful Loulou"
Scott Waterman donated
LINDSEY SMITH has raised $12,121.04 so far
I'm Multiple events for LINDSEY SMITH because we want to find a cure of CDKL5 Disorder
Nick Smith has raised $3,089.40 so far
I'm Everything we can to raise money for CDKL5 UK 🇬🇧 for Nick Smith because My son was diagnosed on 24th Aug 2017 with CDKL5
Nikki Maguire has raised $2,904.80 so far
I'm Nikki for Nikki Maguire because I want to help fund and raise more awareness.
Stuart Phillips has raised $742.10 so far
I'm I am running the Havering Half Marathon on Oct 6th for Stuart Phillips because a little girl deserves the best life she can get
Kay Pullen has raised $581.21 so far
I'm We are going to Run, cycle or do something for Kay Pullen because CDKL5 UK supports llittle Amber be great
P Smith has raised $498.89 so far
I'm 3 peaks challenge in 24 hours for P Smith because this cause is close to both off us.
