In January 2022 our son George was diagnosed with the CDKL5 deficiency disorder. Each day can be difficult for him as he battles the worst symptoms associated with the condition. Unable to talk, move or feed orally - and with seizures and gastro issues every day - he requires constant supervision and support. Despite all these issues, he inspires us by being so resilient, calm and content - he even shares the occasional smile that melts our hearts!

It's been both a challenging and rewarding 3 years as we do our utmost to make sure George lives his best life. We are fortunate to be surrounded by incredibly supportive family and friends, as well as a wider network of healthcare professionals, charities, and a CDKL5 support network.

3 years after the diagnosis. It's time for me (alongside George's Aunty and Uncle) to raise some awareness of the condition. I'll do this by fundraising for the CDKL5 UK charity, who are raising awareness, supporting families and carers, and raising funds for important research.

I'll be running the following events in 2025, and I'd hugely appreciate your support for a charity that is so close to our hearts.

Given what George goes through every day, there is no better motivation for getting the miles in!

Thank you for your support!

Inverness 1/2 Marathon (March)

Stornoway 1/2 Marathon (May)

Scottish 1/2 Marathon (August)

Loch Ness Marathon (September)