Pompe Support Network

We Support people living with Pompe Disease to enjoy a good life after diagnosis

Support us by donating or fundraising today - every contribution helps make a difference!

Charity Registration No. 1186383

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About us

We are a network of individuals, families, scientists, and healthcare professionals who aim to improve the lives of all people living and working with Pompe disease. The network is run by members of the Pompe community, for the benefit of the Pompe community.

Fundraisers

  • The Journey for Pompe

    £745.00
    raised by 17 supporters
    30%
  • Countrywoman's Guide

    £0.00
    Cancelled
  • Countrywoman's Guide

    £0.00
    Cancelled
  • Countrywoman's Guide

    £0.00
    Cancelled
  • Countrywoman's Guide

    £0.00
    raised by 0 supporters
    0%