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Our beautiful son Ben died on February 23rd, 2017. He was found in his bed by his Mum, Mel. Despite desperate attempts to resuscitate him, he had already passed away in his sleep. We had to wait an agonising 2 months, before the coroner gave the reason why Ben had died as SUDEP. We had never heard of it. We want to raise awareness of SUDEP, so that nobody goes through the devastation we are going through.

Ben was a beautiful, gentle giant, and he is missed terribly by all who knew him. We will continue to honour his memory by raising people's awareness. Thankyou for remembering our amazing and beautiful son.

Mel and Chris Heap