Brittle Cornea Syndrome (BCS) is a rare disease that causes Blindness.

Children with BCS have unusually thin corneas – the transparent layer on the eye’s surface. The cornea can be so fragile that common accidents such as being poked in the eye can prove devastating, rupturing a child’s eyeball and leaving them blind in that eye.

“Children with the disorder often suffer some hearing loss, because they have floppy ear drums. They can also have loose joints, sometimes suffering dislocated hips. The biggest problem though is that the children have unusually thin corneas, which puts them at risk of severe vision problems and even blindness.”

My son was born with BCS and it has been a struggle, in and out of hospital for scans and treatments. My fiancé and I are raising money to help the research and development to bring a better understand of the rare condition and to find the correct medication to help children suffering.