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Tilly Brown raised £2,792 from 93 supporters
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Closed 27/11/2016
Iʼve raised £2,792 to help fund Charlie's medical treatment
- Funded on Sunday, 27th November 2016
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Story
As most of you know, our little lady Charlie has had a bit of a rough start in life. She was diagnosed before birth with Turner syndrome and a severe heart condition. At 1 week old, Charlie received life saving open heart surgery and we left the hospital a few weeks later feeling hopeful for her future.
A week later we found out that Charlie had suffered a stroke at birth which left her with brain damage. As a result of this brain damage, Charlie has right sided hemiplegia (paralysis), Cerebral Palsy, Suspected Epilepsy, severe reflux, and significant feeding difficulties amongst other medical issues.
Charlie has always struggled with feeding and has been fed via NG tube on/off since birth to aid her nutrition. Some of you may have witnessed a video shared on 'C & Me' which shows the pain and distress Charlie goes through when swallowing. Charlie spends a lot of time on antibiotics or in hospital with chest infections & as a result of months of repeated bad experiences with food, Charlie now refuses any food and is terrified of swallowing. She absolutely hates the tube which causes her discomfort and she regularly trys to pull it out. Charlie's feeding issues are long term, and she needs an operation to have a gastrostomy feeding tube fitted to allow her to enjoy food at her own pace whilst still getting the nourishment she needs.
After being referred for a gastrostomy on the NHS, we have found out that there is a large waiting list and we could be waiting for up to 1 year for this operation.
So we are asking for help from our families and friends to help us to fund this treatment privately. This is very expensive, but we feel we don't have any other choice. We hope that by doing this, our happy little girl will return and she can enjoy stress free meal times like she deserves.
The operation will cost approx £3000. any contributions at all will help ❤❤ Thank you.
Updates
3
- 8 years ago
Tilly Brown
8 years agoSurgery is going ahead and the support we have received from all our friends and family (and complete strangers!) have made us feel like we aren't alone on this journey. We can't thank you enough. xxx
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- 8 years ago
Tilly Brown
8 years agoI need to make sure my baby never has to go through this ever again- https://m.facebook.com/story.php?story_fbid=1213534522002628&id=1159249580764456 Please continue to share and help us get Charlie the help she needs and deserves. ❤❤
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- 8 years ago
Tilly Brown
8 years agoThank you all so much for your donations. It means so much to our family. As we have reached our original target of £500 (ahh thank you!!) I have extended it! I never expected to reach that target and am completely blown away by your generosity! The Operation will cost in the region of £3000 and your contributions will help us so so much. ❤❤
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Tilly Brown started crowdfunding
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Supporters
93
Ruth, James and Georgie
Nov 11, 2016
I hope the treatment goes well x
£50.00
Judith Brown
Nov 10, 2016
With lots of love, Julie xx
£10.00
Judith Brown
Nov 10, 2016
With lots of love, Agneta xxx
£10.00
Jo Parsley and family
Nov 10, 2016
Good luck with Charlie's operation. It will make the world of difference. Lots of love to you all, and big hugs and kisses to your beautiful girlie 💖xxx
£20.00
Tierra Smith
Nov 9, 2016
From my Mum x
£10.00
Howard Last
Nov 5, 2016
Get well soon charlie x
£20.00
Rosie, Roly, Anne & Andy
Nov 5, 2016
Sounds like this will make all the difference to Charlie... almost there!
£40.00
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