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Gail Brook raised £656 from 19 supporters
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Closed 03/02/2017
Iʼve raised £656 to Sarah's Dream
- Amington, Tamworth, Staffordshire.
- Funded on Friday, 3rd February 2017
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Story
We are parents whose daughter, Sarah, passed away from Huntington's Disease on 17th October 2016. We run a small charity called 'Sarah's Dream'. All money collected is ultimately passed directly to The Huntington's Disease Association of Great Britain. We cover any expenses from our own pocket. We started in October 2015.
Sarah's Dream is our 1800 Goldwing motorcycle which we use to raise funds, as Sarah had a great love for motorcycles.
We have just completed our second Christmas of visiting children at home (Jeff - Santa Claus. Gail - Mrs Claus) and we have the motorcycle lit up with hundreds of multi-coloured lights.
Huntington's Disease (HD) and Juvenile Huntington's Disease (JHD) is a devastating, hereditary illness. It is comparable to suffering Motor Neurone Disease, Parkinson's Disease and Alzheimer's Disease all at the same time.
THERE IS NO CURE OR TREATMENT AND IT ALWAYS ENDS IN DEATH.
We need a cure, but also help and support for the families who have to live with this terrible disease.
As I mentioned before, it is a hereditary illness, so the children of any parent suffering from HD have a 50/50 risk of inheriting either HD or JHD. The onset of JHD can be as young as 4 or 5, so no sooner have they learned to walk and talk and eat, they start to lose those abilities at the onset until they, also are helpless and death is the only outcome.
My daughter died at the age of 37, lying in a bed in a nursing home where she had been for over 5 years. She was unable to walk, talk, eat (fed entirely by tube directly into her stomach) and had no co-ordination. Her brain was gradually being destroyed and eaten away. It is like being a prisoner in ones own body.
We strive to raise awareness, a cure, and help and support for those suffering and their families.
Updates
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- 8 years ago
Gail Brook
8 years agoShare this update to help us raise more
Gail Brook started crowdfunding
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Supporters
19
CHERYL ROULSTON
Jan 29, 2017
From everyone at the Trent Wings Christmas party. It was lovely to surprise Jeff with the amount raised at our Xmas party night last night and to meet young Sarah, what you have raised is amazing xx
£146.00
Helen Weir
Jan 28, 2017
Great cause. Keep going mate. Helen & Jim
£10.00
Kevin Duncan
Jan 27, 2017
Make the dream come true
£25.00
Anonymous
Jan 27, 2017
£10.00
Angie Limb
Jan 27, 2017
God bless you and your family. Its wonderful of you to have the strength to help others.
Peter Gee
Jan 25, 2017
I saw your bike around Tamworth over Xmas. And I didn't know you were doing what you did. As a Rotarian who was hitting the streets collecting for our Santa Sleigh. I appreciate what you are achieving
£50.00
Anonymous
Jan 24, 2017
Sorry this is wee bit late. I'm sending this on behalf of Alba Wings Region of GWOCGB It's our privilege to help in this way. Wishing you every success in everything you do x
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