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Amie Marie raised £550.5 from 35 supporters
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Closed 20/01/2020
Weʼve raised £550 to fund research for ME Action UK
- Funded on Monday, 20th January 2020
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Story
On 09/01/20 I will be giving my hair a big-old chop!
How much we raise will determine how much goes!
<£100 = Barely a trim :(
£250 = shoulder length
£500 = pixie cut
£1000 = I will go bald
25% of ME sufferers are bedbound.
Not long ago, that was me.
I was formally diagnosed at 13 years old, having been ill for at least 5 years. My mysterious illness had kept me from school, friends, and important days out and it had a massive list of symptoms. This made it all the harder to diagnose.
At Great Ormand's Street Hospital for children, I finally found out what the doctors had settled on: Chronic Fatigue Syndrome, also known as myalgic encephalomyelitis (ME). This is a condition without a cure, and the current treatments have been proven to cause more harm then they help.
Therefore, I am now fundraising for the UK arm of #MEAction - a global grassroots network of people with ME and allies fighting for ME health equality. Their volunteers and staff work throughout the year campaigning for biomedical research funding and an end to harmful treatments. Each year #MEAction coordinates the #MillionsMissing campaign, with cities across the UK and globe shouting out and demanding research, treatment and equality for people with ME.
At 23, after officially ten years of illness, I've learnt how to cope with the symptoms and can hold down a job despite my disability. But I'm in a tiny minority of ME sufferers, and there's no logic to why I'm coping now when I didn't for so many years.
I spent most of my teen years in bed, unable to go outside or cope with light or noises. With full-body pain and a tearfully painful, unending fatigue, I wanted hope that this illness would one day be cured or at least treated.
With donations to ME Action, we can give other sufferers hope.
By chopping up to 28 inches of my hair off!
Thank you for reading this far.
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Shout out to Emily, another #MEwarrior in Norwich: https://www.edp24.co.uk/news/health/emily-canwood-from-fulmodeston-on-suffering-from-me-1-6440557
In this article, Emily explains the symptoms more precisely than I have.
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EXTRA FEATURES
- HIGHEST DONOR DECIDES IF I HAVE A FRINGE OR NOT*
*If multiple people donate the same, highest figure then the most recent donor will be the decider.
Updates
11
- 4 years ago
Amie Marie
4 years agoShare this update to help us raise more
- 4 years ago
Amie Marie
4 years agoPhoto update - this is my new look! A pixie cut with a long fringe on top. Thank you so much for all your support!
Share this update to help us raise more
- 4 years ago
Amie Marie
4 years agoThe chop is happening thanks to you people and your amazing kindness and passion. Pics to follow.
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Amie Marie started crowdfunding
Leave a message of support
Supporters
35
Carol Freeman
Jan 12, 2020
Anonymous
Jan 9, 2020
Julie Edenborough
Jan 8, 2020
Go girl!! Enjoy the freedom of less hair! Thanks for raising money for the rest of our ME family. Xx
£5.00
Anonymous
Jan 8, 2020
£20.00
Julia Barrett
Jan 8, 2020
Donated for my friend Stephanie for her birthday as she has been diagnosed with this illness. Good luck to you
£10.00
Olivia
Jan 8, 2020
You're gonna rock the pixie cut!
£5.00
Linda
Jan 8, 2020
Good luck Amie. I'm sure your new cut will look great. A worthy cause and more research is needed.
£30.00
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Amie Marie
I'm Amie, who most of you will know. I'm a recent UEA drama graduate living and working in Norwich. This is despite suffering with ME, a disabling life-long condition of full-body pain and incurable fatigue. Hoping to put some good into the world with a no-pressure fundraiser.