On August 6th 2016 myself and my partner Hollie had to suffer the terrible ordeal of losing our first child to a syndrome known as TRIPLOIDYat 17 weeks premature . Completely heartbroken but determined to make a change we are currently creating a charity from scratch , not only help raise awareness of these horrible diseases and syndromes but to help refurbish the three bereavement rooms in our local hospitals making sure that even in the most terrible times we can help the family's feel as comfortable as possible . The rooms will benefit from new specialised machinery , complete redecoration and some soft furnishings .