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liane huntley raised £46 from 9 supporters

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Closed 21/10/2017

0%
£46
raised of £20,000 target by 9 supporters

    Weʼve raised £46 to we're raising £20,000 for William to get a good night sleep he has a rare sleep disorder Just £1 will buy 2 bricks to build new bedroom

    Chesterfield, United Kingdom
    Funded on Saturday, 21st October 2017

    Don't have time to donate right now?

    Story

    Please donate just £1 to help us buy buildings materials for every £1 detonated we can buy 2 house bricks, a £1 is all I am asking for

    you can't even park your car , grab a coffee or have a ice cream for a £1, my hope is to get lots of people to donate you just won't miss a pound its loose change, but can help a family struggling with this rare condition rhythmic movement disorder and ADHD

    William has special needs and we need your help, please donate to his page
    We are fundraising to build William a new bedroom with a special bed from creative care bed ,William condition is rare and no funding available to help the families deal with server cronic Rhythmic movement disorder with head banging and body rocking in low leave of sleep, there NO CURE he sits up in bed and at force slams his head to his ankles all over and over with no control all night long but he is a sleep, the sound he makes keeps the whole family awake, the impact on the bed and mattress is high and breaking 4-5 bed a year
    it has taken us 13 years of broken sleep to now finely get a diagnosie what it is , he is on with 3 hospitals Chesterfield, Sheffield children's hospital and Southampton he also has ADHD learning delays and autism days are hard on there own and then up all night ,the bed costs £5,000 and the rest is for a new extension as William is 6ft 3 so bed needs to be 7ft long made to measure. we also will have to have bedding made to fit bed
    We need bring him down stairs and build a bedroom so the family can get a good night sleep , me his mum have been up every night it sounds like a basketball hitting the wall over

    We have been told that there is no cure and need to have a management plan, so we can get a good night rest William is 14 years old now and need to look to his future
    please help me to reach our goal please DONATE and share our story your Facebook timelines
    we have a Facebook page go to Williams good night campaign
    please have a fundraiser for us

    Updates

    1

    • liane huntley7 years ago
      liane huntley

      liane huntley

      7 years ago

      Just a quick update on how we are doing we have now raised 2,850 on and off line our first target is £5,000 for the bed and then will start for the building work, this weekend I have raised £150 at a event selling bubbles ,craft pegs and doing glitter body art tattoo went very well, If anyone knows of a event we could come to please let me know as I have a large range of the glitter body art tattoos As Williams school did a fundraiser for us so have £1,000 to be added to total when payment arrives

      Share this update to help us raise more

    7 years ago

    liane huntley started crowdfunding

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    Page last updated on: 7/26/2017 09.01

    Supporters

    9

    • Nanny pat

      Nanny pat

      Jul 6, 2017

      Good luck

      £2.00

    • Rachel huntley

      Rachel huntley

      Jul 6, 2017

      £2.00

    • liane huntley

      liane huntley

      Jul 4, 2017

      Good luck

      £5.00

    • liane huntley

      liane huntley

      Jul 4, 2017

      Thank you for your donation Mandy knit n natter

      £5.00

    • Anonymous

      Anonymous

      Jul 4, 2017

      Good luck william

      £5.00

    • Anonymous

      Anonymous

      Jul 4, 2017

      £2.00

    • Sue Elliott

      Sue Elliott

      Jun 25, 2017

      Wishing you and your family good luck with your fundraising Liane x

      £10.00

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    About the fundraiser
    liane huntley

    liane huntley

    Chesterfield, United Kingdom

    I am Williams mum and are we are raising money for my son who has not had a good night sleep since he was 1 years old ,he suffers from a rare sleep condition called rhythmic movement disorder and has taken the family years to get a diagnosis, we need lots of people to donate £1

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