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Brenda Scott raised £22,115.5 from 247 supporters
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Closed 20/09/2022
Iʼve raised £22,115 to Emily and Megan’s scoliosis journey
- Northern Ireland
- Funded on Tuesday, 20th September 2022
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Story
Update: Emily has had her surgry BUT unfortunately our youngest daughter Megan has been diagnosed with border libe severe scoliosis with a double curve of 21 degrees and 39.6 degrees. She has been referred to NHS but waiting times sit at around 18 mobths to be seen and braced and goodness knows how much she will of progressed by then so we decided to take her to Turkey and she was braced within 24 hrs. She will need follow up and new braces every 4-6 mths and may still need surgery. SO our fundraising continues 😢😢😢
My Daughter Emily age 12 was diagnosed in March with Scoliosis 40 degree curve we had to go private due to the length of time between gp referral and initial consultation at Musgrave. Since then covid struck and services were halted though progression of scoliosis does not halt. Most services are now all back up and running though scoliosis clinics have still not resumed. WHY??? Our children have been left on the shelf with no means of help, this infuriates me, lots of other parents, consultants and nursing staff alike.
Emily was to be seen again in June but due to no clinics taking place we had to go private for a second time to be told her curve has now increased to 50 degrees with a Severe trunk shift which in turn causes her a lot of pain and discomfort. She has now been placed on the waiting list for spinal fusion surgery with no indication of waiting time. How long is a piece of string?
If my daughter was an animal she would not be left to suffer. This is not only affecting them physically but also affecting their mental health and well being
Also any extra will be donated to Megan's Wish charity a charity very close to our heart who goes above and beyond for children with scoliosis and their families.
Thank you to everyone who has taken the time to read our story.
Updates
6
- 3 years ago
Brenda Scott
3 years agoWe got some awful news today that Megan need a surgery sooner rather than later. As her curve is lumbar the best surgery for her would be VBT which will help her maintain her flexibility. VBT is best done on a growing child so we have a very small window of time to have this done. Please share our story and get my baby the surgery she needs xx
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- 3 years ago
Brenda Scott
3 years agoThank you so much to each and everyone of our donators. We are sitting at just a few £££ shy of £18000 which is absolutely amazing. We are praying that Turkey moves to Amber list next week for us to return with both Emily and Megan for follow ups. Each trip will cost approx £3000 - £3500 so we would really appreciate if you could share with all your family and friends. Thank you Brenda, Stephen, Emily and Megan xxx
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- 3 years ago
Brenda Scott
3 years agoThank you to everyone for your donations, we are extremely grateful, we are sitting at a grand total of £ 12546.00. Thank you all so so much 💚💚💚💚( I’m not sure how to add in offline donations to just giving )
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Brenda Scott started crowdfunding
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Supporters
247
Anonymous
Apr 5, 2022
Rotary Club of Larne
Feb 26, 2022
£50.00
Sandra
Feb 19, 2022
£20.00
Anonymous
Dec 28, 2021
Lee Hodge
Dec 26, 2021
£10.00
Anonymous
Dec 16, 2021
Keep going! You're all in my thoughts and prayers.
Sean mitchell
Dec 11, 2021
£20.00
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