This is willow my 25 month old little girl, at 14 months willow had a grand mal serzuire lasting 1hr and 50 minutes, she stopped breathing for 3 minutes doctors managed to resuscitate her, she had an MRI which came back okay apart from left side was slightly smaller in growth.

Since then she's been in and out of hospital every 4 weeks having up to 30 serzuires at a time with no stopping in between all I can do is watch and talk to her, she's had genetic blood tests done which take a year to come back.

Her development is of a 12 to 14 month old, I was told she has epileshy but unsure of what type as of yet. After the last episode of serzuires last weekend and a 1 minute of non breathing all I was told is too look into buying safety equirement for home and alerts me if willow stopped breathing throughout the night.. unfortunately for a breathing monitor and serzuire alert system I'm looking over £1000 I'm a single mum trying to work parttime as well as studying at collect if I had the money to spend on every equirement that could save my babies life I would! I've spent sleepless nights in my daughter's room just staring at her checking her breathing, making sure she's okay!

I was also told last week that she is party blind and deaf.. this has affected her speech and development.

Any money that is left over (if any made) I will be donating it to my favourite epilepsy charity!