Your friends are fundraising. Don't miss out, opt in.

0

%

£105raised of £1,000 target by 8 supporters

Weʼre raising £1,000 to Fund CRPS research and patient support.

Darwen, UK
13 days to go

What is crowdfunding?

Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered charity.

The page owner is responsible for the distribution of funds raised.

Story

Hi, I'm Dan and I'm living with CRPS.

CRPS - or Complex Regional Pain Syndrome (also known as RSD, or Reflex Sympathetic Dystrophy) - is a disorder affecting parts of the body which is characterised primarily by severe pain. Other symptoms include pathological changes to bones, joints and skin, excessive sweating, swelling, and hypersensitivity to even the lightest touch.

CRPS is the most painful condition known to man. On the McGill Pain index, it ranks higher than childbirth and amputation. There is no cure. It is often dubbed "the suicide disease" because the agony it causes can literally be unbearable.

I developed CRPS due to complications arising from surgery to replace both of my hips. I have been through some very rough episodes, and I still get flare ups that make even getting out of bed impossible. I was lucky that I was diagnosed early on and now my condition is pretty well managed. I still get pain on a daily basis, but I'm able to lead a fairly normal existence.

Other people aren't so lucky. Some face amputations, others rely on wheelchairs, and others still are confined to indefinite bedrest. As I said, sadly some sufferers are in so much pain that they see suicide as their only escape.

CRPS is still poorly understood. Research isn't very well funded and specialist support services are scarce. With your generosity, I hope to change that.

On Sunday 29th July, I will attempt to complete a 30-mile sponsored walk from Blackpool Tower to Darwen Tower in under 10 hours.My goal is to raise at least £1,000 which will be divided equally between the following entities:

1. Burning Nights CRPS, a UK charity that does amazing work supporting patients with this horrific illness. They receive no government funding. Their registered charity number is 1166522. Their website is www.burningnightscrps.org

2. CRPS Forum, an online community where CRPS patients and advocates can offer help and advice. Please visit www.crpsforum.com

Every little helps. Thank you.

Share this story

Updates

3

  • Dan Van Zandt3 months ago
    Dan Van Zandt

    Dan Van Zandt

    3 months ago
    Update from the Page owner

    Share this update to help us raise more

  • Dan Van Zandt3 months ago
    Dan Van Zandt

    Dan Van Zandt

    3 months ago
    Update from the Page owner

    Share this update to help us raise more

  • Dan Van Zandt3 months ago
    Dan Van Zandt

    Dan Van Zandt

    3 months ago
    Update from the Page owner

    Share this update to help us raise more

4 months ago

Dan Van Zandt started crowdfunding

Leave a message of support

Page last updated on: 8/5/2018 8:44 PM

Supporters

8

  • The Nelson

    The Nelson

    Aug 5, 2018

    Best of luck, we're behind you all the way :)

    £20.00

  • Vierka Mrlianova

    Vierka Mrlianova

    May 24, 2018

    £10.00

  • Eleanor Jones

    Eleanor Jones

    May 13, 2018

    All the best on your challenge

    £5.00

  • Mark Maxwell

    Mark Maxwell

    May 13, 2018

    My friends daughter has to deal with this condition, so anything that can help has to be good.Good luck Dan!

    £20.00

  • Nikki Hart

    Nikki Hart

    May 10, 2018

    All the very best of luck 🍀

    £10.00

  • Christine Branch

    Christine Branch

    May 10, 2018

    Good luck with your challenge.

    £10.00

  • Leandra Bramham

    Leandra Bramham

    May 9, 2018

    Good luck!!! 😊

    £10.00

Dan Van Zandt

Become a supporter

Help Dan Van Zandt raise more

About the fundraiser
Dan Van Zandt

Dan Van Zandt

Darwen, UK

Report this Page

* JustGiving crowdfunders pay a small fee for our service. Find out how much it is and what we do for it.

Donate