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Dan Van Zandt raised £105 from 8 supporters

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Closed 04/09/2018

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£105raised of £1,000 target by 8 supporters

    Weʼve raised £105 to Fund CRPS research and patient support.

    Darwen, UK
    Funded on Tuesday, 4th September 2018

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    Story

    Hi, I'm Dan and I'm living with CRPS.

    CRPS - or Complex Regional Pain Syndrome (also known as RSD, or Reflex Sympathetic Dystrophy) - is a disorder affecting parts of the body which is characterised primarily by severe pain. Other symptoms include pathological changes to bones, joints and skin, excessive sweating, swelling, and hypersensitivity to even the lightest touch.

    CRPS is the most painful condition known to man. On the McGill Pain index, it ranks higher than childbirth and amputation. There is no cure. It is often dubbed "the suicide disease" because the agony it causes can literally be unbearable.

    I developed CRPS due to complications arising from surgery to replace both of my hips. I have been through some very rough episodes, and I still get flare ups that make even getting out of bed impossible. I was lucky that I was diagnosed early on and now my condition is pretty well managed. I still get pain on a daily basis, but I'm able to lead a fairly normal existence.

    Other people aren't so lucky. Some face amputations, others rely on wheelchairs, and others still are confined to indefinite bedrest. As I said, sadly some sufferers are in so much pain that they see suicide as their only escape.

    CRPS is still poorly understood. Research isn't very well funded and specialist support services are scarce. With your generosity, I hope to change that.

    On Sunday 29th July, I will attempt to complete a 30-mile sponsored walk from Blackpool Tower to Darwen Tower in under 10 hours.My goal is to raise at least £1,000 which will be divided equally between the following entities:

    1. Burning Nights CRPS, a UK charity that does amazing work supporting patients with this horrific illness. They receive no government funding. Their registered charity number is 1166522. Their website is www.burningnightscrps.org

    2. CRPS Forum, an online community where CRPS patients and advocates can offer help and advice. Please visit www.crpsforum.com

    Every little helps. Thank you.

    Updates

    3

    • Dan Van Zandt1 year ago
      Dan Van Zandt

      Dan Van Zandt

      1 year ago
      Update from the Page owner

      Share this update to help us raise more

    • Dan Van Zandt1 year ago
      Dan Van Zandt

      Dan Van Zandt

      1 year ago
      Update from the Page owner

      Share this update to help us raise more

    • Dan Van Zandt1 year ago
      Dan Van Zandt

      Dan Van Zandt

      1 year ago
      Update from the Page owner

      Share this update to help us raise more

    1 year ago

    Dan Van Zandt started crowdfunding

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    Page last updated on: 8/5/2018 20.44

    Supporters

    8

    • The Nelson

      The Nelson

      Aug 5, 2018

      Best of luck, we're behind you all the way :)

      £20.00

    • Vierka Mrlianova

      Vierka Mrlianova

      May 24, 2018

      £10.00

    • Eleanor Jones

      Eleanor Jones

      May 13, 2018

      All the best on your challenge

      £5.00

    • Mark Maxwell

      Mark Maxwell

      May 13, 2018

      My friends daughter has to deal with this condition, so anything that can help has to be good.Good luck Dan!

      £20.00

    • Nikki Hart

      Nikki Hart

      May 10, 2018

      All the very best of luck 🍀

      £10.00

    • Christine Branch

      Christine Branch

      May 10, 2018

      Good luck with your challenge.

      £10.00

    • Leandra Bramham

      Leandra Bramham

      May 9, 2018

      Good luck!!! 😊

      £10.00

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    About Crowdfunding
    About the fundraiser
    Dan Van Zandt

    Dan Van Zandt

    Darwen, UK

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