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josephine Eames raised £165 from 7 supporters
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Closed 16/04/2018
Iʼve raised £165 to help William have a higher quality of life with Duchenne Muscular Dystrophy
- Funded on Monday, 16th April 2018
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Story
Why are we doing this? Who is 'Defending William Against Duchenne'?
William Eames, our beautiful, caring, funny, articulate little boy was diagnosed with Duchenne Muscular Dystrophy in January 2016 at just 3 years old.
Duchenne MD is one of the most common fatal genetic disorders to affect children around the world. 1 in 3500 boys are affected with DMD. It is a devastating, progressive and currently incurable muscle-wasting disease. Duchenne results in progressive loss of strength and is caused by a mutation in the gene that encodes for dystrophin, a protein that plays a key structural role in muscle fibre function. Boys with DMD do not produce dystrophin.
Life expectancy is improving as standards of care and knowledge about Duchenne increase however, there is currently no cure for Duchenne.
As a family we had never heard about this condition, and we are still learning.
We want to raise awareness of William and Duchenne – we need a cure, but we also need to ensure a fabulous life for our boy too so we set up the cause Defending William Against Duchenne in January 2018.
Find out more at our website. Thank you for your time and donation.
Matt, Jo, William and Phoebe Eames
Updates
1
- 7 years ago
josephine Eames
7 years agoShare this update to help us raise more
josephine Eames started crowdfunding
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Supporters
7
Steve Darlow
Mar 26, 2018
Passing on donation from Hemel Storm supporter.
£100.00
Kathryn Taylor
Mar 25, 2018
It was great to see you all at last night’s game. Good luck with the fundraising.Love from Kat at Storm x
£10.00
Dave Barry
Mar 24, 2018
Very touching moment at tonight's game. Wishing you all the very best. X
£5.00
Peter Lewis
Mar 24, 2018
Best wishes to you all and I really hope William enjoys the game tonight.Michaels’s Uncle
£20.00
Anonymous
Mar 24, 2018
£10.00
Marie Yates
Mar 22, 2018
💙🏀🥇x
£10.00
Carol Humphrey
Mar 22, 2018
Good luck with the fundraising. With love from Carol and family at Hemel Storm xx
£10.00
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