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Nicola Bloxsidge raised £895 from 15 supporters
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Closed 31/05/2018
Iʼve raised £895 to be able to finally give Ella a voice
- Funded on Thursday, 31st May 2018
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Story
Ella is a beautiful, funny and loving 11 year old, but…
she has Rett Syndrome.
Imagine the symptoms of Autism, Cerebral Palsy, Parkinson’s, Epilepsy and Anxiety Disorder… all in one little girl.
Rett Syndrome is a serious lifelong neurological disorder that is caused by random mutations in a gene called MECP2. Diagnosed almost exclusively in girls, symptoms typically appear at about 12-15 months. It is potentially a life shortening condition, but some girls have lived until middle age.
Ella is unable to speak or use her hands. She cannot sit down or stand up on her own or walk far without help. She has breathing problems, epileptic seizures, and scoliosis. However, we believe Ella understands her environment and what is said to her, but crucially has no way to respond. She is locked inside a body that simply doesn’t function properly.
Imagine not being able to ask for a drink when you want one.
Imagine being unable to sit down when you are tired and not being able to ask for help.
Imagine having a headache and not being able to tell anyone.
This is what it is like for Ella every day.
As Ella is unable to use her hands, using an eye controlled speech generating device has the ability to unlock her potential. Many girls with Retts have successfully used eye gaze systems to communicate. Using such a device, Ella would at last be able to tell us some of her thoughts, wishes and needs, which would transform her life.
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Supporters
15
spencer meyer
Dec 6, 2017
Good luck, from a relative of Jess Meyer.
£60.00
Jessica Meyer
Dec 2, 2017
£20.00
Lucy Smart
Nov 25, 2017
Wishing you all the best, from Lucy Smart and family xx
£10.00
Anna Walton
Nov 9, 2017
This is a fabulous way of helping a beautiful girl to communicate with her family.
£30.00
Anonymous
Nov 2, 2017
All best wishesAngela & Bill
£25.00
Debbie Tilsley
Oct 10, 2017
Sorry we can't make it to the 2nd quiz ! Hope it goes really well ! Lots of love, Debbie & Davidxxx
£20.00
Bill Geraats. VISTA Learning Services, Canada.
Oct 10, 2017
We are wishing you the very best of success in finding all the medical services needed to give Ella the same happy life as her sister and brother. Bill and Jean Geraats, Canada.
£30.00
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