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£90raised of £500 target by 6 supporters

Weʼre raising £500 to Lee is doing Europe's Toughest Mudder 12/5/18 to raise funds for treatment abroad for our Nephew Riley.

Brough, UK
20 days to go

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Story

My 6 year old Nephew suffers from 2 very rare medical conditions; Moyamoya disease, a very rare condition affecting 1 in 1,000,000 - it is narrowing of the blood vessels supplying the brain and the episodes which Riley had been suffering were TIAs or mini strokes. Failure to treat would lead to full blown stroke. Hypothalamic hamartoma, another rare condition affecting 1 in 200,000. This is a benign tumour in his brain which was initially diagnosed as stable. However, Riley has since suffered uncontrolled giggling fits lasting up to 10 minutes (gelastic seizures) and other symptoms can follow. This can be a progressively disabling condition.

Riley has already had 2 major brain surgeries lasting a total of 15 hours. More treatment will be needed, but some of which is not available on the NHS, so he will have to go abroad.

My brother in law is raising funds to fund this treatment, and to also raise awareness of these conditions. If excess funds are raised or treatment proves impossible, monies will go towards research into these conditions and to the charities which assist children who suffer from rare and similar conditions and which support their families; and will be an ongoing charity after Riley's needs are met. All fundraising is carried out under #lifeofriley

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Updates

2

  • Emily Pearson3 months ago
    Emily Pearson

    Emily Pearson

    3 months ago

    £55 of donations on just giving and £381 off line sponsorship 👍🏻😀💓 thankyou so much. Still time for further donations guys 🏃‍♂️

    Update from the Page owner

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  • Emily Pearson4 months ago
    Emily Pearson

    Emily Pearson

    4 months ago
    Update from the Page owner

    Share this update to help us raise more

4 months ago

Emily Pearson started crowdfunding

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Page last updated on: 5/12/2018 9:21 AM

Supporters

6

  • Katie Sutton

    Katie Sutton

    May 12, 2018

    Good Luck Lee!!!! Amazing what you are doing for Riley 💙💙💙 lots of love The Sutties x x x x x

    £30.00

  • Sophia Corbett

    Sophia Corbett

    May 10, 2018

    £5.00

  • Anonymous

    Anonymous

    May 10, 2018

    £5.00

  • Jenna Black

    Jenna Black

    May 10, 2018

    £10.00

  • vlad tutuianu

    vlad tutuianu

    May 6, 2018

    £20.00

  • Vanessa Baslington

    Vanessa Baslington

    May 6, 2018

    I hope you reach your target and more to help Riley and possibly others get the treatment for a better life.

    £20.00

Emily Pearson

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About the fundraiser
Emily Pearson

Emily Pearson

Brough, UK

We are Auntie & Uncle to 6 year old Riley, his health and happiness is paramount to us.

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