My 6 year old Nephew suffers from 2 very rare medical conditions; Moyamoya disease, a very rare condition affecting 1 in 1,000,000 - it is narrowing of the blood vessels supplying the brain and the episodes which Riley had been suffering were TIAs or mini strokes. Failure to treat would lead to full blown stroke. Hypothalamic hamartoma, another rare condition affecting 1 in 200,000. This is a benign tumour in his brain which was initially diagnosed as stable. However, Riley has since suffered uncontrolled giggling fits lasting up to 10 minutes (gelastic seizures) and other symptoms can follow. This can be a progressively disabling condition.

Riley has already had 2 major brain surgeries lasting a total of 15 hours. More treatment will be needed, but some of which is not available on the NHS, so he will have to go abroad.

My brother in law is raising funds to fund this treatment, and to also raise awareness of these conditions. If excess funds are raised or treatment proves impossible, monies will go towards research into these conditions and to the charities which assist children who suffer from rare and similar conditions and which support their families; and will be an ongoing charity after Riley's needs are met. All fundraising is carried out under #lifeofriley