Lilee-Anne is a bubbly 5 year old with a great love for food, but underneath the happy exterior, she has a multitude of problems.

Lilee-Anne was born with most of her brain missing, meaning that her condition is very life limiting and is solely dependent on her parents 24 hours a day. She has very complex needs and will never be able to do anything independently.

Lilee-Anne is no stranger to hospitals, where as a 5 year old she has been rushed in 54 times, 3 of those times they almost lost her, but as the nurses have come to name her, "Rocky" keeps on figthing. Lilee-Anne is currently on a waiting list for a pace maker for her brain which is required due to a rare severe form of epilepsy. Unfortunately this is Lilee-Anne's biggest obstacle, as frequently whilst experiencing a seizure, Lille-Anne will vomit which can lead to more problems as well as being severely distressing for both her and her parents.

On the 29th of July I will be partaking in a tandem skydive in order to raise money for this curageously inspiring little girl.

Just like any 5 year old girl, Lilee-Anne likes all things bright, shiny and glittery, so all money raised will go towards building a fully equipped sensory room which will help engage her senses in a safe familiar environment.