Your friends are fundraising. Don't miss out, opt in.

We did it!

Genevieve Jones raised £4,042 from 129 supporters

or

Start your own crowdfunding page

Closed 27/11/2016

0%
£4,042
raised of £4,964 target by 129 supporters

    Weʼve raised £4,042 to get treatment for a dangerous lung infection

    London, United Kingdom
    Funded on Sunday, 27th November 2016

    Don't have time to donate right now?

    Story


    There have been a lot of news stories lately about antibiotic resistance. At the moment, antibiotics are the only effective prevention and treatment of an ever-increasing range of infections. If they stop working, you could die. This, unfortunately, has happened to me.
    I was born with Bronchiectasis, a condition that causes scars on the lungs. This means I get infections fairly often. But this time it is different.
    Following surgery to remove a cyst from my thorax four years ago, I suffered a collapsed lung. A protracted stay at the hospital thus caused infection with bacteria (Pseudomonas aeruginosa) that can’t be treated by antibiotics. I’ve had eight different kinds – orally, via nebulisers and IV drips – but the doctors at my specialist London lung hospital have told me that they can’t kill it, only try and control it.
    It makes me feel pretty ill most of the time, and is causing more damage to my lungs. Eventually I may need to carry permanent oxygen just to breathe. The existing treatment is quite extensive, with antibiotics at home followed up by weeks of in-patient stays every couple of months. They have quite horrible side effects; the most dangerous can cause organ failure. This is basically my future with the Superbug: it may kill me. Obviously this isn’t ideal, so I’ve been looking into other treatments and have found phages.
    Phages are successfully used in Eastern Europe instead of antibiotics. Antibiotics work by killing lots of bacteria in the gut, both the good and bad, whereas phage therapy clinics keep a huge library of phages which they match to the harmful bacteria. There are no known side effects. I have been in contact with a top phage clinic in Tbilisi, Georgia. There is a good chance they can eradicate the bug entirely with a fortnight’s trip there.
    I’m keen to go ahead as soon as possible! But it isn’t cheap. So I’m asking for help. It will make a HUGE difference to my life –it may even save it -so please consider donating. Thank you!

    Updates

    2

    • Genevieve Jones8 years ago
      Genevieve Jones

      Genevieve Jones

      8 years ago
      Update from the Page owner

      I'm utterly joyous at how much was raised, thank you all so much. For those worrying, I will recieve all of it, (minus a small fee) and have kindlly been offered a loan to meet the rest of the amount. I leave on Wednesday (tomorrow) for Tbilisi, Georgia, where treatment will start almost immediately. I'm going to be blogging about the trip here: http://adventuresinphages.wordpress.com THANK YOU ALL, THIS IS SO AMAZING !

      Share this update to help us raise more

    • Genevieve Jones8 years ago
      Genevieve Jones

      Genevieve Jones

      8 years ago

      I just wanted to say a really. really big thank you to everybody who has helped. I'm so touched and a little bit tearful every time I get the notification that says "You've got a donation!" I'm currently arranging things with the clinic and have made a provisional booking for December at the Eliavia Institute in Georgia. I'm determined that by the time it comes around I will be able to go! Half way there already! I researched lots of clinics and this is best for my needs. It's also mentioned here: http://www.bbc.co.uk/news/health-21799534

      Share this update to help us raise more

    8 years ago

    Genevieve Jones started crowdfunding

    Leave a message of support

    Page last updated on: 11/27/2016 23.47

    Supporters

    129

    • Anonymous

      Anonymous

      Nov 27, 2016

    • Anonymous

      Anonymous

      Nov 27, 2016

      healing wishes your way xx

      £20.00

    • Neil Semple

      Neil Semple

      Nov 27, 2016

      Thinking of you. Love Doo. X

    • Stuart Morrison

      Stuart Morrison

      Nov 27, 2016

      £20.00

    • Vicky Semple

      Vicky Semple

      Nov 27, 2016

      Sorry it's not much. You are welcome to one of my lungs though. I think they are both good. xxxxxxxxxxxxxxxxxxx

    • alasdair mcwilliams

      alasdair mcwilliams

      Nov 27, 2016

      £20.00

    • Anonymous

      Anonymous

      Nov 27, 2016

      £10.00

    What is crowdfunding?

    Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered charity.

    The page owner is responsible for the distribution of funds raised.

    Great people make things happen

    Do you know anyone in need or maybe want to help a local community cause?

    Create you own page and donʼt let that cause go unfunded!

    About Crowdfunding
    About the fundraiser
    Genevieve Jones

    Genevieve Jones

    London, United Kingdom

    Report this Page