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£2,620raised of £10,000 target by 76 supporters

Weʼre raising £10,000 to We did it! Thank you all so much.

Bradford, United Kingdom
20 days to go

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Story

UPDATE: We have now raised the full £10,000 and purchased Georgie's eye-gaze machine. We are so incredibly grateful to everyone who shared our page and donated their hard earned money. So to everyone who baked cakes, ran - and sang- their hearts out and even shaved their heads, thank you... we have been blown away by your support and we thank God for you all.

Our 4 year old daughter, Georgiana, has a profound and rare disability called Rett Syndrome. Essentially, Georgie is missing a chromosome. Unfortunately, this chromosome is vitally important in the development of communication and physical skills. Georgie cannot speak at all and cannot use sign language as she is unable to control her hands: this means that she cannot tell us anything. She is locked in. Many researchers believe that Rett girls have a good understanding of the world around them and can develop skills with specialist support, however, without the means to communicate, those skills remain undeveloped, which must be extremely frustrating for Georgie as well as dangerous because Georgie cannot tell us when she is in pain. Rett Syndrome causes epileptic seizures in Georgie and she has almost continual epileptic activity in her brain. At the moment, Georgie has no way of telling us that she feels unwell enough to lead to a seizure.

But there is a solution! An electronic eye-gaze machine would enable Georgie to communicate, it would also enable her to have some control over her life- from what she listens to on the radio and watches on television to allowing her to let someone know she needs the toilet: all massive things for her. The eye-gaze would really transform her life- enabling her to make herself heard. The eye gaze program and computer costs approximately £10,000 and that’s why we’re embarking on a year of fund raising.

Our beautiful, funny, charming little girl is adored by everyone who knows her and we would love to provide her with the opportunity to gain some independence.

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Updates

4

  • Kelly Sharp8 months ago
    Kelly Sharp

    Kelly Sharp

    8 months ago
    Update from the Page owner

    Share this update to help us raise more

  • Kelly Sharp1 year ago
    Kelly Sharp

    Kelly Sharp

    1 year ago
    Update from the Page owner

    Share this update to help us raise more

  • Kelly Sharp1 year ago
    Kelly Sharp

    Kelly Sharp

    1 year ago
    Update from the Page owner

    Share this update to help us raise more

1 year ago

Kelly Sharp started crowdfunding

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Page last updated on: 11/26/2018 2:34 PM

Supporters

76

  • David and Miriam Adamson

    David and Miriam Adamson

    Nov 26, 2018

    God bless you all. We gave this gift in honour of our parents, Bert and Linda Robinson.

  • David and Miriam Adamson

    David and Miriam Adamson

    Sep 16, 2018

    God's blessings.

  • Karen Wilcock

    Karen Wilcock

    Jun 22, 2018

    Good luck with your fund raising from everyone at Wyedean Weaving

    £250.00

  • Anonymous

    Anonymous

    Jun 21, 2018

    a little something for the fund!

  • A Gilmore

    A Gilmore

    Jun 21, 2018

    For Willow and Seth walking for their friend Georgie!

    £10.00

  • Anonymous

    Anonymous

    Jun 7, 2018

    <3 Good luck xxx

    £20.00

  • Barbara Hanratty

    Barbara Hanratty

    May 29, 2018

    £5.00

Kelly Sharp

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About the fundraiser
Kelly Sharp

Kelly Sharp

Bradford, United Kingdom

My beautiful daughter Georgie can't speak because of a rare condition called Rett. We would love to purchase an eye gaze machine that would change her life!

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