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Alex Buttery raised £4,114.51 from 114 supporters

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Closed 20/07/2017

0%
£4,114
raised of £5,000 target by 114 supporters

    Weʼve raised £4,114 to help fund equipment and medication for Joseph, and raise awareness of Lissencephaly

    Manchester, United Kingdom
    Funded on Thursday, 20th July 2017

    Don't have time to donate right now?

    Story

    This page has been put together in order to help raise awareness of Grade 1 Lissencephaly and support the Daniel family with their son Joseph, who was recently diagnosed with the condition at 4 months old.

    Grade 1 Lissencephaly is an extremely rare brain disorder where the surface of the brain appears completely smooth. Although the condition is extremely rare, research into this has shown that babies diagnosed with the condition will be be severely affected neurally.

    The condition affects 10 in every million babies, but grade 1 is the most rare of the condition and affects only two babies in every million. Although Joseph is an extremely happy and beautiful baby boy, he has a difficult road ahead, which is where we come in. This condition, and more specifically grade 1, results in most children not making it through infancy due to respiratory complications or seizures, which is why we need to raise awareness. Although the condition can't be reversed and cured it is important to research why it happens to try and help other families.

    This page was set up to support a family that we all care dearly about. Not only does this condition affect the family emotionally, but there are extreme costs for Josephs treatment and to ensure he has the care that he needs. We would like to help and support a family that give so much to others and expect nothing in return.
    Several people have expressed their wish to donate to Joseph's care and therefore have set up this page as two combined schools.

    Please donate, large or small to help us make a difference to a family that means so much to us.

    Many Thanks,

    Team Harrop and MCA.

    Updates

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    Alex Buttery

    Updates appear here

      7 years ago

      Alex Buttery started crowdfunding

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      Page last updated on: 7/19/2017 14.04

      Supporters

      114

      • Julie York

        Julie York

        Jul 19, 2017

        Another donation on behalf of Harrop Fold fund raising.

        £228.51

      • Katie Templeton

        Katie Templeton

        Jul 12, 2017

        Lots of love and best of luck little man xxx

        £10.00

      • Jean Brockley

        Jean Brockley

        Jul 12, 2017

        £25.00

      • Anonymous

        Anonymous

        Jul 9, 2017

        💙

        £50.00

      • Rachel Elizabeth

        Rachel Elizabeth

        Jul 9, 2017

        XXXXXXX

        £20.00

      • Phil McKenzie

        Phil McKenzie

        Jul 8, 2017

        Sending love to you all xx

        £30.00

      • Frank Boldy

        Frank Boldy

        Jul 7, 2017

        Lots of Love from Frank, Lauren and Jackson x

        £20.00

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      About the fundraiser
      Alex Buttery

      Alex Buttery

      Manchester, United Kingdom

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