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Katy Pearce raised £120 from 7 supporters.

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Closed 08/08/2018

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£120raised of £200 target by 7 supporters

    Weʼve raised £120 to Sponsor me to run the half marathon on April 22nd and help a ‘Chance for Charlie’

    Southampton, UK
    Funded on Wednesday, 8th August 2018

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    Story

    I first met Charlie about 8 years ago, a sweet and lively little boy that lived next door to me. It was heart breaking to see this cheeky little boy full of so much life get diagnosed with such a horrible condition - Duchenne Muscular Dystrophy. Chance for Charlie

    Duchenne Muscular Dystrophy (DMD) is a progressive muscle wasting condition.

    DMD is always fatal.

    It is the most common child hood genetic disorder. The disease almost always affect boys, with 1 in 3,500 being effected. Their are estimated to be 2,500 known children with Duchenne in the UK and 300,000 worldwide.

    Those effected by DMD have a fault in their genetic code. This fault means their bodies are unable to produce a protein called Dystrophin. Dystrophin is needed to repair muscles.

    The fault within the genetic code is different in every child. In Charlie's case he is missing part 49 and 50 of his Dystrophin Code. The code that makes up the gene is like a puzzle. If a piece of the puzzle changes it can't fit together properly.

    At present Charlie's body is failing him, his legs are giving way, he is falling often, his body aches, he experiences extreme tiredness and has associated Autistic traits. He understands he has poorly muscles and recognizes the difference in his peers.

    Duchenne will gradually paralyze Charlie's body and leave him with heart failure.

    But Charlie is lucky in some ways - he has an amazing family who will never give up fighting for his life and happiness. I see how hard his mum Claire is working to raise money to help Charlie and give him the best possible life and I’d like to help...that is why I want to push myself further than ive ever ran before and complete the abp half marathon whilst raising funds and awareness for Charlie and DMD.

    Updates

    2

    • Katy Pearce4 months ago
      Katy Pearce

      Katy Pearce

      4 months ago
      Update from the Page owner

      Share this update to help us raise more

    • Katy Pearce4 months ago
      Katy Pearce

      Katy Pearce

      4 months ago
      Update from the Page owner

      Thank you for your donations!! We are 1/4 of the way there to raise £200 To help Charlie..the money will go towards making his home more accessible, trying to prepare for when he is using a wheelchair full time, making a wet room and to fit electric ramps into the car. www.chanceforcharlie.com

      Share this update to help us raise more

    4 months ago

    Katy Pearce started crowdfunding

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    Page last updated on: 4/28/2018 4:14 PM

    Supporters

    7

    • Harry Mailer

      Harry Mailer

      Apr 25, 2018

      Good on you Katy from friends of Charlie & co, Alastair, Karen and Harry

      £20.00

    • Chris Coleman

      Chris Coleman

      Apr 21, 2018

      Great charity - best of luck

      £30.00

    • Marlene Parmenter

      Marlene Parmenter

      Apr 12, 2018

      £20.00

    • Rob Crouch

      Rob Crouch

      Apr 10, 2018

      Good luck Katy !

      £10.00

    • Nicola Still

      Nicola Still

      Apr 10, 2018

      So proud of you, your dedication to your training is amazing and all for a brilliant cause, you can do this xx

      £10.00

    • Anonymous

      Anonymous

      Apr 10, 2018

      £20.00

    • Anonymous

      Anonymous

      Apr 10, 2018

      I’m sure you will make it, just remind me to give you the money 😉

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    About Crowdfunding
    About the fundraiser
    Katy Pearce

    Katy Pearce

    Southampton, UK

    I am running the abp half marathon to raise money and awareness for Charlie and Duchenne Muscular Dystrophy.

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