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kirsten bailey raised £480.5 from 53 supporters.

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Closed 14/02/2018

120%
£480raised of £400 target by 53 supporters

    Weʼve raised £480 to help me go to a conference about my condition. THere are loads of people with SMA and it is the only time we feel normal

    Location
    Cambridge, United Kingdom
    Time left
    Funded on Wednesday, 14th February 2018

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    Story

    I have Spinal Muscular Atrophy (SMA) type 2 and for many years there have been confrences about SMA where people and their families with SMA can go to. It happens once a year and it is a fantastic opportunity for people with SMA and their families to meet. Meet new friends and experience feeling normal. There are so many people with SMA there it is amazing.

    However teenager, Adults and ocassionaly children can't be lifted as it will damage either their back or their parents/carers back and most people with SMA havent got the muscle strength to sit on a proper toilet. So need a commode chair which also doubles up as a shower chair. As people with SMA can't stand under a shower.

    It is difficult going on holiday or going to conferences etc as we need these and not many hotels have them. I have found a place that hires both the showerchair and hoist for £400, which is silly money considering I cant go to the loo or bed without this equipment. Every £1 given will make it £1 closer to me going as if i cant raise £400 I cant go as the room itself is £100, there are auctions to raise funds at the conference and raffles too, plus a day out and i cant afford it. I need a break to clear my head also from all the fundraising i do even though i love it and this would be a perfect chance for me to do this. So even if it is £1 that is a huge help.

    Updates

    1

    • kirsten bailey1 month ago
      kirsten bailey

      kirsten bailey

      1 month ago
      Update from the Page owner

      Share this update to help us raise more

    5 months ago

    kirsten bailey started crowdfunding

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    Supporters

    53

    • Chris TatumHorsfield

      Chris TatumHorsfield

      Jan 31, 2018

      Kirsten, hope this helps

      £20.00

    • holly thompson

      holly thompson

      Jan 31, 2018

      Good luck

    • l page

      l page

      Jan 29, 2018

      Good luck

      £2.00

    • Emma Cullen

      Emma Cullen

      Jan 27, 2018

      £10.00

    • Laura Draghici

      Laura Draghici

      Jan 27, 2018

      Kirsten wishing you best of luck with your procedure and speed recovery! Lots of love 💕

      £10.00

    • Sarah Reid

      Sarah Reid

      Jan 27, 2018

      ♥♥

      £5.00

    • Sara Merritt

      Sara Merritt

      Jan 27, 2018

      Have a great conference!

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    About Crowdfunding
    About the fundraiser
    kirsten bailey

    kirsten bailey

    Cambridge, United Kingdom

    I have Spinal Muscular Atrophy (SMA) type 2 and for many years there have been confrences about SMA where people and their families with SMA can go to. It happens once a year and it is a fantastic opportunity for people with SMA and their families to meet other SMA people

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