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kirsten bailey raised £480.5 from 53 supporters
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Closed 14/02/2018
Iʼve raised £480 to help me go to a conference about my condition. THere are loads of people with SMA and it is the only time we feel normal
- Cambridge, United Kingdom
- Funded on Wednesday, 14th February 2018
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Story
I have Spinal Muscular Atrophy (SMA) type 2 and for many years there have been confrences about SMA where people and their families with SMA can go to. It happens once a year and it is a fantastic opportunity for people with SMA and their families to meet. Meet new friends and experience feeling normal. There are so many people with SMA there it is amazing.
However teenager, Adults and ocassionaly children can't be lifted as it will damage either their back or their parents/carers back and most people with SMA havent got the muscle strength to sit on a proper toilet. So need a commode chair which also doubles up as a shower chair. As people with SMA can't stand under a shower.
It is difficult going on holiday or going to conferences etc as we need these and not many hotels have them. I have found a place that hires both the showerchair and hoist for £400, which is silly money considering I cant go to the loo or bed without this equipment. Every £1 given will make it £1 closer to me going as if i cant raise £400 I cant go as the room itself is £100, there are auctions to raise funds at the conference and raffles too, plus a day out and i cant afford it. I need a break to clear my head also from all the fundraising i do even though i love it and this would be a perfect chance for me to do this. So even if it is £1 that is a huge help.
Updates
1
- 7 years ago
kirsten bailey
7 years agoShare this update to help us raise more
kirsten bailey started crowdfunding
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Supporters
53
Chris TatumHorsfield
Jan 31, 2018
Kirsten, hope this helps
£20.00
holly thompson
Jan 31, 2018
Good luck
l page
Jan 29, 2018
Good luck
£2.00
Emma Cullen
Jan 27, 2018
£10.00
Laura Draghici
Jan 27, 2018
Kirsten wishing you best of luck with your procedure and speed recovery! Lots of love 💕
£10.00
Sarah Reid
Jan 27, 2018
♥♥
£5.00
Sara Merritt
Jan 27, 2018
Have a great conference!
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kirsten bailey
Cambridge, United Kingdom
I have Spinal Muscular Atrophy (SMA) type 2 and for many years there have been confrences about SMA where people and their families with SMA can go to. It happens once a year and it is a fantastic opportunity for people with SMA and their families to meet other SMA people