We did it!
Lauren Draper raised £3,489.3 from 152 supporters
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Closed 28/11/2018
Iʼve raised £3,489 to help fund special equipment and regular physio for Hugo with a rare genetic condition.
- Derby, UK
- Funded on Wednesday, 28th November 2018
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Story
Hugos story, I finally feel ready to open up and talk about our journey, hoping to help and support others. At just 7 months old i began to worry why he wasnt hitting his mile stones and was becoming very weak. He struggled so much he couldnt even lift up his arms Or move his body. In my gut i knew something wasnt quiet right. So i took him to the hospital, they soon began all the checks, from countless blood tests, to MRI scans, gene tests, brain scans, EEGs, nerve tests and injections in the muscle tests. It was a long and stressful process but i knew i had to keep brave and strong for Hugo. (i never ever prepared myself for this, it was so scary the unknown) My amazing partner and family stood by my side all the way. We finally got all the results back and came back he had a few complications, epilepsy, low muscle tone, delayed development and a rare gentic condtion. Stopping him from talking, sitting up, crawling, walking and eating. (You know when you just go numb and dont feel a thing, i felt just like that, it was undescribable). Luckly i have the most amazing support around to help us on this new, long and tough journey. As you can imagine the services and equipment are very expensive and sparse, and funds are tight within the hospital NHS. Hugo has got no equipment or any aids to help him progress, and his pysio is not frequent. I was so anxious about doing this page but SO many people have said just go for it, there are so many kind people and Charities that help children all over the world in these situations. Hugo is just over 2 now and still cant eat, talk, crawl or walk, its possibly the hardest thing in the world seeing your baby struggle so much and feeling helpless but i know i have to keep going for him. Hugo is honestly the most amazing, strong, content and happiest soul ive ever met And will ever meet. I am so lucky and proud of him in so many different ways. I want to
help others and support other families in similar situations, if we can raise the funds for equipment and special aids, we will kindly pass them onto other children that need help too. from the bottom of mine, my family and mostly Hugo‘s heart thankyou. I am so utterly thankful and grateful, This means so much to our family and will change our daily life. (Just want to thank our very special and brave friend Sue, without your help and support we wouldnt be where we are today. We are so lucky to have you in our life x)
Thankyou for helping me, for changing my life and letting me live like other children love Hugo Louie xxxx
Updates
3
- 6 years ago
Lauren Draper
6 years agoMaking memories, if you haven’t yet tried Matlock this summer, I really recommend it, from a mini pool area to boat rides it suits all families and children. Hugo loved the boat ride as he loves anything that moves! Next week Hugo starts his intense Pysio sessions, so it’s lots of hard work 💪🏽
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- 6 years ago
Lauren Draper
6 years agoSo many beautiful messages, kind wishes and healing sent to our Hugo. Thankyou again everyone routing for Hugo. 🙏🏽❤️
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- 6 years ago
Lauren Draper
6 years agoJust want to say again, Thankyou this will change Hugo’s life completely. Here is Hugo happy as ever, enjoying the sunshine ❤️
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Lauren Draper started crowdfunding
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Supporters
152
Barbara and Michael Crane
Sep 10, 2018
Yours is an inspirational journey. Keep on going with your beautiful boy.
£50.00
Elephant Rooms
Sep 10, 2018
Donations from Elephant Rooms Open Morning in support of Hugo
£326.30
Anita Howells
Sep 2, 2018
Sending very best wishes from our family to yours.Good luck with fundraising x
£20.00
Richard Boyes
Aug 26, 2018
Hope this helps towards your £4K total.With all Best Wishes fromJennie & Dick Notes
£20.00
Lucy Jordan Cottle
Aug 22, 2018
He’s so beautiful and you should be so proud! 💛
£5.00
Danielle Hulett
Aug 22, 2018
I hope Hugo get's the help he deserves. xx
Sian Hennessy
Aug 22, 2018
You’re truly amazing! I hope you raise all the money you need. Also, Hugo is the cutest little boy!!! Sending lots of love ♥️
£10.00
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