I've raised £1000 to Cover the medical costs of living with Chronic Illness: Chronic Fatigue, Severe Hypermobility disorder and Chronic Regional Pain Disorder.

Organised by Zoe Arnold
Donations cannot currently be made to this page
Lincoln, United Kingdom ·Disability support

Story

Hello,

I'm Zoe and I am trying to raise funds to the cost of living with multiple chronic illnesses. Thank you for reading, I appreciate the support, even if you only like or share my page I am so greatful.

A lot of what I need to live independantly isn't NHS covered, my wheelchair, sticks, supports etc. are out of pocket. Although hopefully I will soon receive physio therapy. Some of the money raised will go towards travel costs to appointments, prescriptions and exo-skeletal brace supports; which act as the joint leaving the muscles to work rather than waste as with othe supports.

I recently started having an type of siezure (after seeing a neurogist we have a possible diagnosis of Non epileptic attack disorder), which result in multiple severe dislocations in both minor and major joints occur during these attacks .

After a siezure on November 3rd I have had to buy an exo skeleton type hip support due to a full hip dislocation. This was £159. The NHS solution is a lower body cast or surgery. My slow healing rate associated with severe Hypermobility disorder makes surgery a last resort. Should surgery become my only option, I would be out of action for months.

Being in a wheelchair means I loose the muscle structure which keeps my joints stable, physiotherapy and joint supports such as my exo-skeleton allow me to lead a normal life outside of a wheelchair. I fight daily to not be fully wheelchair bound and always use a stick or walking aid. Exo-skeletal supports are expensive, but will transform my life if I can raise the funds for more than one type of brace.

Follow my story for more information and see my progress @zoes_tribe on Instagram.

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About fundraiser

Zoe Arnold
Organiser

Donation summary

Total
£545.28