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Liam Fynn on behalf of Lee Grieve and Ross Litherland raised £2,798 from 46 supporters
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Closed 01/08/2018
Weʼve raised £2,798 to Lee and Ross will be cycling from Sheffield to Edinburgh Castle and then back to The Britannia Inn Chesterfield a whopping total of 520 mile
- Chesterfield, UK
- Funded on Wednesday, 1st August 2018
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Story
A lovely little girl called Lilia….
Lilia was born on the 10th October 2013 after a very very long wait of 41 weeks and six days. She was overdue by 13 days but the pregnancy had been all things lovely and her parents, Amy and Liam, were extremely excited to meet their first baby.
After a straightforward pregnancy and labour Lilia was born after her heartbeat was lost by the midwife. The emergency cord was pulled by a shocked and distraught Liam and the amazing doctors came at lighting speed. The baby was taken away into the emergency room and resuscitated for 9.5 minutes. The beautiful baby had come back from the dead, her determination being a sign of things to come. Lilia had been deprived of oxygen for over 10 minutes and was pronounced HIE Grade 2.
Amy and Liam saw their baby for the first time after 30 minutes and only for a few seconds before she was taken to the NICU to be ‘cooled’ to just above hyperthermic temperature.
Lilia lived for the next hour, and the next, and by 5 hours later she was breathing by herself. She was cooled for the next 3 days. Amy finally held her baby for the first time on her 5th day.
After 72 hours everyone waited for a whole day to see if the baby would survive being ‘warmed’ back to normal temperature. Lilia has seizures during her first week of life but she did surprise us all and continued to live. Amy and Liam were told that the chance of brain damage was probable but to what extent would be unknown.
Lilia began to miss milestones from an early age. She did not put her hands to her mouth, roll over, sit up, and the list goes on. At 5 months old Amy and Liam were told that Lilia had Quadriplegic Cerebral Palsy (affecting all of her limbs and body). However, one thing she did do was SMILE. She smiles all the time. She laughs lots (except when she is doing her physio!). She loves to play but does become frustrated when she finds this difficult.
Lilia has many appointments with her Physiotherapist, Occupational therapist and the speech and language therapist. In addition she attends a charity therapy centre every few months to track her progress and learn new physio techniques which the NHS do not always have the time to do. Amy was told that Lilia would never walk. Nobody knows if this is the case but we are determined to give her the best chance possible.
Lilia loves to be around her friends and cousins and wants desperately to join in. Amy and Liam are committed to her having as many experiences as possible in her life, and not missing out on anything due to her condition. This is why they would like to raise money for a specially designed trike. These cost anywhere from £1000 - £6000 as they are specially adapted. Lilia would also benefit from a new therapy called ‘Therasuit’ therapy which is currently happening in America. This is a 3 weeks course of daily 4 hour therapy while wearing a space suit, as well as oxygen therapy to help heal the brain. This will cost in the region of £15,000 so the fund raising has now begun. We know Lilia is one of the luckiest little girls ever as she has so many amazing, lovely, thoughtful people in life….you know who you are…we love you.
Updates
1
- 6 years ago
Liam Fynn on behalf of Lee Grieve and Ross Litherland
6 years agoShare this update to help us raise more
Liam Fynn on behalf of Lee Grieve and Ross Litherland started crowdfunding
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Supporters
46
Pauline Thompson
Jun 22, 2018
Ross, this is the £25 from Stuart Hodgson
£25.00
Gavin Alcock
Jun 5, 2018
2p a km 😆 #oldschoolsponsorship
£16.00
Martin Gibson
May 29, 2018
Great effort guys!
£20.00
Anonymous
May 22, 2018
Great ride
£20.00
Anonymous
May 21, 2018
Great effort
£52.00
matthew williams
May 21, 2018
Well done lads great cause
£10.00
Daniel Kendall
May 21, 2018
Well done lads great achievement for a worthy family
£20.00
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Liam Fynn on behalf of Lee Grieve and Ross Litherland
Chesterfield, UK
Lee and Ross will be cycling from Sheffield to Edinburgh Castle and then back to The Britannia Inn Chesterfield a whopping total of 520 miles in around 30 hours. They will set of on Friday 18th May and should arrive Saturday 19th May around 5pm with little or no sleep