PLEASE take time out to read our story... This is a crowdfunding page linking to the fundraiser night we are holding at the Mount Pleasant Hotel in Doncaster on Friday 6th October. I have had a lot of people asking how they can make donations if they are unable to make the event so here is the just giving page for that. We have set it as a crowdfunding so that the donations raised here will be put in with the donations raised on the night and ALL be split between the MNDA and ourselves to help get moving with home changes making it more comfortable for my Mum in her own home.

So here goes...

In 2003 Lisa had problems with her eyesight which was diagnosed as Optic Neuritis, a condition that causes reduced vision and even blindness. A second diagnosis in 2013 of the same condition had the same symptoms but as before she recovered.

In January 2016, Lisa noticed a reduced movement in her left hand which had her thumb and index finger starting to curl. She went to her G.P. and he suggested that she should go to see a Consultant to further investigate. Eventually in October 2016, Lisa was diagnosed with Multiple Sclerosis following a lumbar puncture and an MRI scan. However the Consultant was not fully convinced and requested further investigations to be conducted. In March 2017 the diagnosis of MND was given, which was devastating to us as a family.

Lisa deteriorated quickly over the next 10 weeks, losing her speech, ability to walk, able to feed herself and drink through a straw. She appears to have finally reached a plateau now and life has some normality, whatever that is.

Contact was made with local South Yorkshire branch of the MNDA. They have assisted in getting sorted with PIP, which is a ridiculous process, obtaining a DS1500, under special rules. Sufferers of MND can move forward with the PIP process by getting their Consultant to issue a DS1500, normally reserved for Terminal Cancer patients with 6 months to live. Currently the Association is involved and has assisted Lisa to with a dual motor rise/recline chair which is linked to her Igaze gridpad which is her way of communication with us.

Advice has been given as to what the Association can offer with regard to assisting with some funding towards home alterations. Going from SSP to ESA means that the process of applying for a disabled facilities grant is a long drawn out process and Lisa may not get this is she does not fit the right criteria. It is quicker to get on with the work and pay yourself as it may not be of any benefit if left to the correct process. Getting straight answers to questions is ridiculous but the MNDA can support you in this.

My Mum has supported me through life & doesn't deserve what she has had thrown at her this year so the least I can do as her daughter is raise as much money as I can to give her something back in return.

Thankyou each and every one of you for you co operation & support xxxxxx