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Lynsey Hyde raised £2,995 from 96 supporters
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Closed 31/12/2020
Weʼve raised £2,995 to Fund the Stem Cell treatment to put my MS to sleep.
- Bishop Auckland, UK
- Funded on Thursday, 31st December 2020
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Story
Acceptance in Mexico means either way I will get this treatment, México is $54000 for just the treatment, on top of this there will be flights and transport, medical test before and after treatment and lots of other bits. My story is as follows
Hello, thank you for taking time to look at my page. This is the part that I tell you my story... and ask if you can you help me.
I'm asking for help to try and free me of the autoimmune disease, that no matter how hard I try to prevent it happening, it controls my life. Step one is an assessment for the eligability of Stem Cell Treatment.
So, this is me... I'm 33 years old, looking back I was a super healthy kid then as a young adult I started with random ailments. When I was about 19 I lost the movement in my right hand... eventually it came back and the medics concluded with an unknown diagnosis . Then, my left arm went dead (like when you wake up having slept on it, but in my case without improving with a bit of a wriggle). Every test was fine and again concluded with an unknown diagnosis. Then one day I woke up with one half of my face feeling funny, I was trying to use mouth wash but only succeeded in covering the bathroom with it! Twenty four hours later I was given a Bell's palsy diagnosis. The doctors told me that they don't know why it happens. The next thing that started to happen was that if I tried to point my head down I got tingles from my waist to my toes, at first I thought it was a trapped nerve but I was wrong. Then my vision went in one eye and I lost 80% of my sight in one eye within in 24 hours. I was a passenger in a car coming home from work, I closed the good eye and couldn't see the car in front... I ended up at hospital and the doctor told me that I had something called retro bulbar neuritis. The doctor said to me "do you want me to write it down for you so you can go home and research it?" She did and I looked it up! Everything that I read mentioned multiple sclerosis. I was devastated. My eye improved but not completely and the eye department recommended that I saw a neurologist. I knew what was coming.
By the time I saw the neurologist I had compiled a diary of the various unknown diagnoses over the years...I left with him saying it was highly likely that I had multiple sclerosis, but that brain and spinal scans were needed. I had the MRI scan.
I knew what was coming and I grieved... I hit a deep depression ... and came back out the other side.
On 17 April 2014 I walked into the neurologist's office knowing what was coming, I heard the words and was finally grateful that I had answers. It was fascinating to see my brain... but there they were ... the white lesions in my brain and spine causing multiple sclerosis. I remember walking out of that office and ringing my Mam... with the words "Mam, it's what I knew...I have multiple sclerosis".
Fast forward 4.5 years, now, my dead arm appears when it wants. My eye hates the sun, sunglasses are essential, or my vision suffers, pins and needles are part of my everyday life and my face hates temperature change because the Bell's palsy reappears. And a massive sensory relapse in my waist and hips causing weeks off work.
So my hope for help and why I am appealing to you all now....
My multiple sclerosis is unstable, I do not have any more lesions, but the lesions I have are changing. The damage is there and effects my day to day life. I'm now taking 65 tablets a day.
Stem cell treatment is proven to stop MS in its tracks, reverse it in cases. It's not an easy choice, MS occurs when the immune system strips nerve fibres in the brain and spinal cord of myelin, a fatty insulating material without which nerve signals cannot be transmitted properly.
HSCT (hematopoietic stem cell transplantation), takes stem cells from patients' bone marrow and freezes them before injecting powerful chemotherapy drugs to destroy the immune system. The stem cells are then transplanted back into the body to generate a new functional immune system with no "memory" of attacking the brain.
The treatment is severe and not an easy option. It will involve my body going to hell and back but in the hope that it will stop the horrid disease in its tracks or any further relapses. The indications are that the stem cell treatment could calm the instability of my MS and allow me to live my life without the constant worry about MS ruling my life ... that's all I'm hoping for. And that hope is enough for me.
So I'm asking you to help. Will you help to fund getting putting my MS to sleep.
I have a brilliant loving and supportive family who are with me every step of the way, who know the importance of trying to stop this and allow me to live the rest of my life MS free.
You can follow my journey on facebook, https://www.facebook.com/hydeshope/
Thank you for taking the time to read ... all I ask is that you share and if you can, that you donate and help me put this autoimmune disease to sleep, thank you
Anything that is raised over the required amount will go to the charity AIMS that Helps others achieve their goals to be able to get stem cell treatment :)
Love Lynsey xx #hydeshope
Updates
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Lynsey Hyde started crowdfunding
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Supporters
96
Kim Hogarth
Nov 4, 2020
Good luck Lyns! Xxx
Lindsay and Neil
Nov 4, 2020
Amazing! Well done for braving the shave and even more so for donating so much hair to those children. Good luck with your next hurdle
£30.00
Barbara evans
Nov 3, 2020
You will take this like everything else in your stride and look fabulous, your strength and determination is an inspiration to us all xx
£40.00
Gordon jackson
May 14, 2020
£100.00
Graeme N
Apr 23, 2020
Very best of luck Lynsey.
£10.00
Anonymous
Apr 21, 2020
fingers crossed C-19 gets out the way
Anonymous
Apr 15, 2020
Best wishes and good luck, Lynsey. Your courage to share your story is inspiring!
£40.00
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