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Sarah Dean raised £4,095 from 140 supporters
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Closed 31/03/2017
Weʼve raised £4,095 to fund a specialised 1:1 key worker for Max to help development after diagnosis with Global Development Delay & social communication disorder.
- Funded on Friday, 31st March 2017
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Story
My nephew Max is a gorgeous little boy who is currently not getting the specialist attention that he needs. Max has been diagnosed with Global Development Delay as well as Social Communication Disorder and is currently awaiting a CDAC assessment which will most likely place him on the Autistic Spectrum. It has been a struggle for parents Helen & Lee to get the help that they need for Max with the NHS being over stretched and not enough help within the education sector for children requiring specialised 1:1 support which Max undoubtably needs. Max will be 4 in March and is completely non-verbal, meaning he is behind in learning most things, even from being unable to tell someone he is feeling unwell to being able to be potty trained.
Max has recently attended sessions at Tracks - a specialist early years centre for children with an autistic spectrum condition. They provide a calm learning environment for children on a 1:1 basis, tailoring a unique learning plan that aims to enable each unique child to fulfil their potential. Also giving them an environment to learn, play and explore the world safely.
Max has responded so well to his first sessions it has been recommended that he attends 3 sessions a week in place of his normal nursery time. Unfortunately the mainstream funding that the government provides for all children once at nursery can't be put towards the cost of 1:1 sessions at Tracks so although Max will be taken out of nursery and not using that funding his parents are unable to use the money towards his 1:1 sessions.
The cost for each sessions at Tracks is £45 x 3 per week = £135 a cost that simply cannot be consumed by Max' parents currently.
The development expected over the course of 2-3 sessions a week will hopefully enable Max to say his first words and possibly join a mainstream primary school in September - this would be invaluable to his development and progression over the next few years.
Updates
3
- 7 years ago
Sarah Dean
7 years agoMax's learning journal at Tracks It's so lovely to read and see all the things he is learning and exploring
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- 7 years ago
Sarah Dean
7 years agoShare this update to help us raise more
- 7 years ago
Sarah Dean
7 years agoThis is Max learning to use the PECs communication book that Max's lovely key worker at Tracks has made to enable Max to attempt to communicate using symbols. This is just some of the amazing work that Tracks does for children to support them with their learning.
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Supporters
140
Lorraine James xxx
Mar 31, 2017
Good luck for your mud race on Sunday xxx
£10.00
M J Lincoln
Mar 31, 2017
£5.00
Claire Edgar
Mar 31, 2017
Hope Max gets the support he needs x
£50.00
Rebecca Newman
Mar 31, 2017
Good luck on your "fun run" Marc Dunleavy! Best wishes for little Max! Hope the donations gets the much needed help he needs! Xx
£10.00
Lyns, Kev, Lilly and Bella
Mar 31, 2017
Good luck Marc Love the Meggett's xx
£20.00
Jan Dean
Mar 30, 2017
Good luck to all taking part in the Diablo Pukka Race on Sunday.xx
£50.00
Adam Dean
Mar 30, 2017
I hope Max gets all the support he needs. Such a happy and playful boy. A real shame that expert treatment is not more widely available and diagnosis has taken so long. Credit to Tracks for their work
£50.00
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About CrowdfundingAbout the fundraiser
Sarah Dean
The "Madness for Max" team Helen, Lee, Sarah, Marc, Wayne, Liz, Kerry and B will be taking part in the first fundraising event which is: 2nd April - Diablo - Pukka Races at Barton Le Clay DIABLO is an OCR race designed to be HARD AS HELL More fundraising events to come....