We did it!
Rachel Jamieson raised £10,677 from 2072 supporters
or
Start your own crowdfunding page
Closed 21/03/2019
Iʼve raised £10,677 to provide a powered wheelchair that will meet Matilda’s needs.
- York, UK
- Funded on Thursday, 21st March 2019
Don't have time to donate right now?
Story
This is Matilda, she is 4 years old. She is the most funny, caring and adorable girl who makes us smile every day.
At the age of 14 months Matilda was referred to her GP due to concerns about her walking, she had a wobbly gait and always needed assistance from an adult. The GP advised go back when she was 2 years old, however, still concerned I took a video of her walking and went back to show the GP when she was 18 months old and the GP agreed this was not normal and she was referred for a hip X-ray for clicks hips, which came back clear. Matilda was then referred to the Head Physiotherapist and Consultant Osteopath who advised she was on the edge of the normal range of movement and again was checked for a clicky hip which was clear again. At this point Matilda was then referred to the Paediatrician to eliminate anything further. I took Matilda to a private Chiropractor who upon seeing Matilda was unfamiliar with her symptoms but contacted an expert Paediatric Chiropractitioner who suggested Limb Griddle Muscular dystrophy. In June 2016 we met with the Paediatrician who suggested Spinal Muscular Atrophy, we’d never heard of this before and panic set in. Blood tests were taking in July 2016 and following a problem with the sample another blood test had to be taken in August 2016. The blood tests results did not come back for 10 agonising weeks and on the 16th September 2016 it was confirmed that Matilda did have Spinal Muscular Atrophy. On the 6th October 2016 we had our first appointment with the Specialist at Leeds who undertook an assessment and confirmed that Matilda had type 3 Spinal Muscular Atrophy. It was at this point that we were told the devastating news that there was no treatment available for Matilda in the UK.
Spinal Muscular Atrophy (SMA) is a rare, genetically inherited neuromuscular condition. It causes progressive muscle weakness and loss of movement due to muscle wasting (atrophy).
Although Matilda is diagnosed as a Type 3 she is at the worst end of Type 3, in some instances she resembles some Type 2 issues. Matilda has a walking frame, a wheelchair and a Wizzybug (first powered chair on a charity loan scheme for under 5's). As Matilda is growing her legs are becoming much weaker and can hardly walk a few steps, so her aides are an absolute must for her. She is now at an age where we can get her a powered wheelchair but as you can imagine these are expensive. This will allow Matilda to as independant and inclusive as possible.
We expect it may take a couple of years to reach our goal, which is why we have started fundraising now.
Thank you
Rachel (Matilda’s mum) xxx
Updates
2
- 6 years ago
Rachel Jamieson
6 years agoWe are still in absolute disbelief that we SMAshed Matilda’s Power Chair fund target. We thank you all for your support and want you to know how life changing it is. For myself and Mike to wake up on Saturday morning and to realise this overwhelming target is achieved, has lifted a huge weight off our shoulders. We can not thank everyone who has supported us enough 💕💕💕
Share this update to help us raise more
- 6 years ago
Rachel Jamieson
6 years agoA massive thank you to all of you who have donated towards Matilda’s wheelchair. If my maths is correct we have now SMAshed the first 12% or £1206.57. As well as the £545 raised through this page, in December my colleagues at the NHS BT York have raised £339.57 with Christmas card money donations and a tombola 🦔🦔🦔🦔. My colleagues on the Hull and Leeds teams raised £102 through donating Christmas card money. We have raised an additional £220 from selling unwanted toys. I would like to say a big thank you for all your support xxx
Share this update to help us raise more
Rachel Jamieson started crowdfunding
Leave a message of support
Supporters
2072
Anonymous
Mar 12, 2019
£10.00
Adam Burke
Mar 10, 2019
£10.00
AJ Bird
Mar 9, 2019
#Charity ninja! Best wishes Matilda
£5.00
Anonymous
Mar 9, 2019
Best wishes # charity ninja
£5.00
Anonymous
Mar 9, 2019
#charityninjas
£2.00
Lauren Groves
Mar 9, 2019
Glad to see you’ve smashed your target! #charityninjas
£3.00
Gillian Watson
Mar 9, 2019
Love from Dexter, Gillian & Rich Watson
£10.00
What is crowdfunding?
Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered charity.
The page owner is responsible for the distribution of funds raised.
Great people make things happen
Do you know anyone in need or maybe want to help a local community cause?
Create you own page and donʼt let that cause go unfunded!
About Crowdfunding