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NIGEL BROOKWELL raised £555 from 18 supporters
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Closed 27/08/2017
Iʼve raised £555 to help raise money for charity nbr 1045005 (Funds for Osteopathic Research into Myalgic Encephalomelitis).
- Wigan, United Kingdom
- Funded on Sunday, 27th August 2017
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Story
Hi there
I am aiming to create a new world record during the Wigan 10K race on 3rd September 17 where I shall be attempting to complete the longest ever land-walk in a vintage 1930s diving suit – it weighs over 4 stone. The suit has been kindly loaned to me by the Historical Diving Society.
It’s ok, I am not just doing this for a laugh (well, just a bit) but am aiming to raise awareness of a condition that my young son (Harry) suffers from – Chronic Fatigue Syndrome / ME. In Jan 16, my son was fine and then a virus turned his life upside down and he hasn’t been able to attend school since. He is 14 years old now. After a long process of elimination, Alder Hey Children’s Hospital diagnosed him with CFS/ME.
My wife and I were shocked at how many other children like Harry were also suffering from this poorly-understood condition and so it has motivated me to do my bit to help. So, this is why I shall be attempting the daftest thing I can think of so as to raise money for - and the profile of - the tiny charity that has supported our son and many others kids like him – FORME (Funds for Osteopathic Research into Myalgic Encephalomelitis…Charity Nbr 1045005). This is a tiny charity that is currently supporting the research being undertaken by Manchester-based Dr Raymond Perrin who developed the Perrin Technique, a manual system of diagnosis and treatment of M.E. / CFS
Given that many sufferers struggle to walk and feel like their legs and feet are made from lead, I thought the weighted suit theme would be a good fit as each boot weighs roughly 25lb !
…………….
Whilst the NHS are doing their best to assist people, there simply isn’t (yet) the understanding and resource to offer sufferers effective treatment (and diagnosis) because the causes are not fully known about. What I do know is that this condition is a long-term nightmare for sufferers and their families and I want to do what I can to help raise awareness of this very debilitating illness.
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Supporters
18
Andrew Khan
Aug 25, 2017
Good Luck mate.
£10.00
Akila Khan
Aug 25, 2017
Good Luck!
£10.00
Lili Marrison
Aug 25, 2017
£10.00
A GRAVES
Aug 25, 2017
Good luck and a very worthy cause. You wouldn't catch me walking that far mate!! :)
£20.00
marion bell
Aug 24, 2017
Good luck Nigel
£10.00
David Shaw
Aug 24, 2017
Good luck Nigel. I think you are a bit mad but brilliant with it
£50.00
Peter Reynolds
Aug 24, 2017
Good Luck Nige! Your "Man Mountain Of The North" title is under threat but for such a good cause!
£5.00
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