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Darren Irwin raised £2,225 from 87 supporters

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Closed 25/10/2017

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£2,225raised of £3,000 target by 87 supporters

    Weʼve raised £2,225 to make improvements at home for Noah and Gracie.

    Carrickfergus, United Kingdom
    Funded on Wednesday, 25th October 2017

    What is crowdfunding?

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    Story

    Noah and Gracie were diagnosed with a rare genetic disease called Vanishing White Matter Disease, a form of Leukodystrophy effecting perhaps as little as 250 people worldwide.

    Noah is physically disabled but the pleasure and stimulation he gets from being outdoors is something we want to facilitate at home. This will require investment in equipment and work to adapt the home and garden but in a nutshell - that’s our goal!

    We’d love you to be part of making this good thing happen.

    You can read more on the story of Noah and Gracie below, as told by their Dad Greg…

    Noah (10) was diagnosed with a rare genetic disease called Vanishing White Matter Disease, this is a form of Leukodystrophy. Noah was almost 3 years old by the time he was diagnosed. Almost a year to the day from Noah’s diagnosis his little sister Gracie (7) was also confirmed to have the same disease.

    To date Gracie has shown few outward signs of progression of the disease however Noah’s has taken hold much more aggressively
    Long term the disease affects the white matter that protects the brain and doctors say eventually the white matter will disappear, Noah is very physically disabled and his cognitive development has been affected. His life expectancy is also reduced to teenage years.

    Noah’s world is a lot smaller now than what it was even a year to 18 months ago, a lot of his time now is spent inside at home, we have a desire to keep him as stimulated as possible. He has spent some time up at the NI Children’s Hospice, there they have special mobility equipment that helps him get around both inside and out in their garden in comfort and relative ease also they have some special sensory equipment that stimulates the senses, we have found this beneficial and if possible would love to be able to replicate some of this at home.

    http://ulf.org/vanishing-white-matter-disease/

    Updates

    8

    • Darren Irwin1 year ago
      Darren Irwin

      Darren Irwin

      1 year ago

      Greg's Knockagh Challenge (sponsored walk) last Friday was the focus of our fundraising but since then, so many of you have asked if you can still support us that we've decided to keep this page open! You now have another 30 days to help us reach our target. Thank you once again!

      Update from the Page owner

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    • Darren Irwin1 year ago
      Darren Irwin

      Darren Irwin

      1 year ago

      Look at this clown...

      Update from the Page owner

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    • Darren Irwin1 year ago
      Darren Irwin

      Darren Irwin

      1 year ago

      What a day yesterday! Even those in the traffic we held-up on the road made a donation! A huge thank you to eveone who got involved so enthusiastically.

      Update from the Page owner

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    1 year ago

    Darren Irwin started crowdfunding

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    Page last updated on: 10/7/2017 7:29 PM

    Supporters

    87

    • Anonymous

      Anonymous

      Oct 7, 2017

      £10.00

    • Anonymous

      Anonymous

      Sep 27, 2017

      £20.00

    • GARETH SMYTH

      GARETH SMYTH

      Sep 26, 2017

      £20.00

    • Christine Hamilton

      Christine Hamilton

      Sep 26, 2017

      £10.00

    • Alan Casement

      Alan Casement

      Sep 24, 2017

      £50.00

    • Anonymous

      Anonymous

      Sep 23, 2017

    • Lorraine Ferguson

      Lorraine Ferguson

      Sep 23, 2017

      Sending your lovely family best wishes!

      £20.00

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    About Crowdfunding
    About the fundraiser
    Darren Irwin

    Darren Irwin

    Carrickfergus, United Kingdom

    As friends and work colleagues of Greg, we're delighted to have the opportunity to help make something good happen for Noah and Gracie. We're also undertaking a sponsored walk on September 22nd @ 3pm - updates on this page closer the time so check back with us regularly.

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